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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Louise Broughton replied to Louise Broughton's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5Louise
Thank you everyone for your super responses. Louise -
- Savannah Wert replied to Savannah Wert's topic in Coping with Celiac Disease2Hey all!
Thank you! I’m currently the breadwinner as my husband is pursuing a finance degree so the nights that I am at work they can eat whatever my husband makes but when I am home we have gluten free meals and no complaints so far! I definitely don’t have a choice but to switch but I think slowly transitioning my family is good!😀 -
- trents replied to Savannah Wert's topic in Coping with Celiac Disease2Hey all!
Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful: It is good that you have identified some other foods that you cannot tolerate at this point as this is so common... -
- Savannah Wert posted a topic in Coping with Celiac Disease2
Hey all!
Hey everyone! I just joined and figured I’d introduce myself, my name is Savannah, I’ve been with my husband for over 8 years and we have 3 kids, a 7 year old, 5 year old, and 3 year old. I was diagnosed with celiac disease beginning of October along with microscopic colitis, lactose intolerance, and sucrose intolerance. I got sick the day before my 5th ... -
- glucel replied to Bindi's topic in Super Sensitive People36Refractory or super sensitive?
I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was...
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By Savannah Wert · Posted
Thank you! I’m currently the breadwinner as my husband is pursuing a finance degree so the nights that I am at work they can eat whatever my husband makes but when I am home we have gluten free meals and no complaints so far! I definitely don’t have a choice but to switch but I think slowly transitioning my family is good!😀 -
Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful: It is good that you have identified some other foods that you cannot tolerate at this point as this is so common in the celiac population and it often goes unaddressed for years. You may find that the lactose intolerance disappears as your gut heals. No guarantee, though. Keep an eye out for the development of celiac symptoms in your children as the likelihood of first degree relatives developing active celiac disease is somewhere between 10% and almost 50%. Yes, the studies on this are all over the map. Is your home gluten free or will you be attempting to avoid CC (Cross Contamination) while fixing gluten-containing foods for your family members? It is always best for everyone in the home to commit to gluten free eating in the home environment when one member has celiac disease.
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By Savannah Wert · Posted
Hey everyone! I just joined and figured I’d introduce myself, my name is Savannah, I’ve been with my husband for over 8 years and we have 3 kids, a 7 year old, 5 year old, and 3 year old. I was diagnosed with celiac disease beginning of October along with microscopic colitis, lactose intolerance, and sucrose intolerance. I got sick the day before my 5th wedding anniversary and thought it was just the flu, which lasted over 3 months. I finally had a colonoscopy and endoscopy and was diagnosed. This has been such a hard transition and any tips are greatly appreciated! -
I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was the one where I had trouble with vitamin k numbers and or was anemic with low hemoglobin, red blood cells etc. My blood pressure drops to very low numbers after taking something as simple as turmeric for a few weeks. My diastolic had touched 50 one day before I finally figured out that the herb was the problem. No intention to go for 40 so never looked back. I wanted to try benfothiamine but one of the listed side effects is bradycardia and other stuff that I am not going to challenge esp since I have had and still have to a lesser degree heart rhythm problems.
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