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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,178 topics in this forum

  1. kimber
    zachsmom
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  2. Shalia
    Nantzie
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    key
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  5. kimber
    Owen'sMom
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    vampella
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    vampella
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  8. Shalia
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  9. jayhawkmom
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  10. emja73
    lonewolf
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  12. girlfromclare
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    grapegrace
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  14. elaine33
    grapegrace
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  15. emja73
    Ursa Major
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  16. Guest nini
    Cheri A
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  17. jo14
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  18. elaine33
    wonkabar
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  19. Amooliakin
    Ursa Major
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  20. twinsma311
    Fiddle-Faddle
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  21. elaine33
    Izak's Mom
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  22. Fiddle-Faddle
    2kids4me
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  23. Debbie44
    daffadilly
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  24. ILOVEOMC
    CarlaB
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  25. SoulKitten
    Generic
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  26. hannahsue01
    abc
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  27. betsy7
    GFBetsy
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  • Recent Activity

    1. - Savannah Wert replied to Savannah Wert's topic in Coping with Celiac Disease
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      Hey all!

    2. - trents replied to Savannah Wert's topic in Coping with Celiac Disease
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      Hey all!

    3. - Savannah Wert posted a topic in Coping with Celiac Disease
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      Hey all!

    4. - glucel replied to Bindi's topic in Super Sensitive People
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      Refractory or super sensitive?

    5. - trents replied to Bindi's topic in Super Sensitive People
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      Refractory or super sensitive?


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    • Savannah Wert
      Thank you! I’m currently the breadwinner as my husband is pursuing a finance degree so the nights that I am at work they can eat whatever my husband makes but when I am home we have gluten free meals and no complaints so far! I definitely don’t have a choice but to switch but I think slowly transitioning my family is good!😀
    • trents
      Welcome aboard, @Savannah Wert! There usually is a learning curve involved in arriving at a consistently gluten free diet since gluten is found in so many food products where you would never expect it to be. This article may be helpful:  It is good that you have identified some other foods that you cannot tolerate at this point as this is so common in the celiac population and it often goes unaddressed for years. You may find that the lactose intolerance disappears as your gut heals. No guarantee, though. Keep an eye out for the development of celiac symptoms in your children as the likelihood of first degree relatives developing active celiac disease is somewhere between 10% and almost 50%. Yes, the studies on this are all over the map. Is your home gluten free or will you be attempting to avoid CC (Cross Contamination) while fixing gluten-containing foods for your family members? It is always best for everyone in the home to commit to gluten free eating in the home environment when one member has celiac disease. 
    • Savannah Wert
      Hey everyone! I just joined and figured I’d introduce myself, my name is Savannah, I’ve been with my husband for over 8 years and we have 3 kids, a 7 year old, 5 year old, and 3 year old. I was diagnosed with celiac disease beginning of October along with microscopic colitis, lactose intolerance, and sucrose intolerance. I got sick the day before my 5th wedding anniversary and thought it was just the flu, which lasted over 3 months. I finally had a colonoscopy and endoscopy and was diagnosed. This has been such a hard transition and any tips are greatly appreciated!
    • glucel
      I don't react the same way to all of them but do react badly to many of them where others may not. I also have a touch of hypochondria so when the labs come back too high or makes me anxious. I am dismayed but not really surprised that I may be in the small group of people to suffer a particular side effect. I was originally on warfirin. I think that was the one where I had trouble with vitamin k numbers and or was anemic with low hemoglobin, red blood cells etc.  My blood pressure drops to very low numbers after taking something as simple as turmeric for a few weeks. My diastolic had touched 50 one day before I finally figured out that the herb was the problem. No intention to go for 40 so never looked back. I wanted to try benfothiamine but one of the listed side effects is bradycardia and other stuff that I am not going to challenge esp since I have had and still have to a lesser degree heart rhythm problems. 
    • trents
      What do you mean when you say, "blood thinners are all the same to me"? Do you mean you react negatively in the same way to all of them? Otherwise, they are not all the same. They work in different ways. Aspirin causes the platelets to be less sticky. Warfarin and related meds work by reducing the production of platelets. You might talk to your doctor about alternatives to aspirin. 
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