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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,178 topics in this forum

  1. Shiba
    Guest
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  2. misgiss
    nettiebeads
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  5. sillyactsue
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  6. meeshyo

    Igg

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  7. genicol
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  8. meeshyo
    genicol

    Genicol

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    sclark9602
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  13. Tasha2004
    queenofhearts
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  14. Esther Sparhawk
    penguin
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  15. meeshyo
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  16. juljoh70
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    2kids4me
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  18. Nantzie
    Ursa Major
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  19. wolfie
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  20. jnclelland
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  21. skipper30
    angel-jd1
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  22. Guest tracey and emma
    gfp

    Exposure To Gluten

    • 1 reply
    • 930 views
  23. misgiss
    2Boys4Me
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  24. debbie-doodles
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  25. averyannsmom
    Satori
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  26. Huey Vincent
    bluesky8130
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  27. genicol
    lorka150
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  • Posts

    • Soleihey
      I have been on supplementation for almost 11 months with no deficiencies showing up on blood work. So was just hoping to hear someone else’s story where it took longer to heal. 
    • Erain
      Here’s the answer from the company 😊   Hi Emily,    Thank you for reaching out to us! We can confirm the Organic Protein + 50 Superfoods Powder is gluten free. The organic barley and wheatgrasses we use are harvested prior to jointing, before the grain forms and any gluten protein is present. Rest assured appropriate measures are taken to ensure our gluten free products comply with the FDA final rule to be labeled as gluten free, as claimed on the side-panel label. Our suppliers are required to verify each ingredient and in order to ensure that our gluten free products comply with the FDA requirements, our manufacturing facilities use the ELISA test method to confirm gluten levels...
    • Erain
      That’s great to know. Thanks Scott
    • trents
      Welcome to the forum, @kim-d! Recently revised guidelines or the "gluten challenge" recommends the daily consumption of at least 10g of gluten for at least two weeks up until the day of the antibody test blood draw. 10g of gluten is the amount found in about 4-6 slices of wheat bread. IMO, I would wait until you have time to do it right so as to remove all doubt as to whether or not your gluten consumption was adequate for long enough to ensure valid testing. In the meantime, focus on removing gluten from your diet and see how your symptoms improve (or not) as one piece of the diagnostic puzzle.
    • kim-d
      Hello. I'm a 22 year old college student and I've had constant stomach problems since I was 14. Recently I noticed that my problems get worse when I eat more wheat. I tried to follow a gluten free diet, which didn't end up entirely gluten free, but I still had reduced my gluten consumption very much, and I felt a lot better. I also have fatigue, inability to gain any weight, iron deficiency, possible vitamin deficiencies, really bad memory and brain fog that increases by time, unexplainable muscle aches and tachycardia which all can possibly explained by celiac/NCGS.  I wasn't able to continue a completely gluten free diet as I am eating from my school and dorm's cafeteria and almost...
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