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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Pasballard replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6Increasing symptoms after going gluten free
I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they are high in carbs. I put on 25 lbs in a short amount of time. Whole Foods are the best way to go but I struggle with this. The cost of gluten free is also a problem. I love black licorice but most have gluten.... -
- growlinhard1 replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Colonoscopy with large area of inflammation
Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted. -
- Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders19Vaccines
The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience... -
- trents replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Colonoscopy with large area of inflammation
Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results. -
- growlinhard1 replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Colonoscopy with large area of inflammation
I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluten free eating may cause false negative biopsy results, I went back to gluten full force and feel like you know what...
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By Pasballard · Posted
I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they are high in carbs. I put on 25 lbs in a short amount of time. Whole Foods are the best way to go but I struggle with this. The cost of gluten free is also a problem. I love black licorice but most have gluten. My favorite chili seasoning as well. The list is endless. I take Advil liquid gels and had no idea until I read this. I hope you do better than I have done. I feel I am destined to suffer daily no matter what. My aunt didn’t take care of herself and died from complications. I hope you can get on a good routine. -
By growlinhard1 · Posted
Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted. -
By Scott Adams · Posted
The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection. -
Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
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By growlinhard1 · Posted
I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluten free eating may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
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