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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- TexasCeliacNewbie replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1High blood test numbers - with scales. Any advice?
I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation. I am only 42 so haven't had a bone density test yet. My calcium was normal, but my D was... -
- TexasCeliacNewbie posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1
High blood test numbers - with scales. Any advice?
Hi, I have been having a lot of back pain and gut issues for 8 weeks or so. I saw the GI on Monday and my results just came in from the lab. Some of these number are high and off the little chart from the lab. I am reading this correctly that I most likely have Celiac, right??? It would explain a lot of things for me. She does have me scheduled for a... -
- trents replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Colonoscopy with large area of inflammation
Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant...- 1
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- AuntieAutoimmune replied to AuntieAutoimmune's topic in Traveling with Celiac Disease2Royal Caribbean Only, Please
Thanks,Scott. Yes, I had already seen those- 1
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- Scott Adams replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Colonoscopy with large area of inflammation
Unless your blood antibody levels are 10x the celiac disease positive level they usually do an endoscopy to confirm the diagnosis. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:
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