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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- trents replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Colonoscopy with large area of inflammation
Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant...- 1
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- AuntieAutoimmune replied to AuntieAutoimmune's topic in Traveling with Celiac Disease2Royal Caribbean Only, Please
Thanks,Scott. Yes, I had already seen those -
- Scott Adams replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Colonoscopy with large area of inflammation
Unless your blood antibody levels are 10x the celiac disease positive level they usually do an endoscopy to confirm the diagnosis. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
- growlinhard1 replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Colonoscopy with large area of inflammation
I haven't had any of this blood work and my GI doctor immediately scheduled the endoscopy with biopsy based on the large area of inflammation found during my colonoscopy and me relating all the other symptoms I'm experiencing. If the blood testing is positive do you still have to have the endoscopy with a positive biopsy to be definitively diagnosed with... -
- Scott Adams replied to Rebeccaj's topic in Super Sensitive People1
glutened?
Many super sensitive celiacs do have issues with this, especially if they work in a bakery or area where flour may be in the air. Some even seem to have issues being in areas where bread is being baked. Here are some threads here on this:
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Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
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By AuntieAutoimmune · Posted
Thanks,Scott. Yes, I had already seen those -
By Scott Adams · Posted
Unless your blood antibody levels are 10x the celiac disease positive level they usually do an endoscopy to confirm the diagnosis. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day: -
By growlinhard1 · Posted
I haven't had any of this blood work and my GI doctor immediately scheduled the endoscopy with biopsy based on the large area of inflammation found during my colonoscopy and me relating all the other symptoms I'm experiencing. If the blood testing is positive do you still have to have the endoscopy with a positive biopsy to be definitively diagnosed with celiac? Seems like a waste of money and risk to do it backwards 😕 -
By Scott Adams · Posted
Many super sensitive celiacs do have issues with this, especially if they work in a bakery or area where flour may be in the air. Some even seem to have issues being in areas where bread is being baked. Here are some threads here on this:
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