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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,178 topics in this forum

  1. mamato4
    nvsmom
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  2. Daisyaday
    ciamarie
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  3. kris2231
    eatmeat4good
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  5. Mizzo
    Kelleybean
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  6. Cara in Boston
    eatmeat4good
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  7. wcalc
    seezee
    • 4 replies
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  8. VydorScope
    StephanieL
    • 11 replies
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  9. Flmom2306
    GottaSki
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  10. AGH2010
    StephanieL
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  12. zramomma
    GottaSki
    • 1 reply
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  13. taterhart
    Rachel Kokosenski
    • 17 replies
    • 3.7k views
  14. scstampin
    semily
    • 4 replies
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  15. mamato4
    semily
    • 9 replies
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  16. gfgramma
    1974girl
    • 16 replies
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  17. Minette
    mamaupupup
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  18. Gluten Free Girls
    shauniscrazy
    • 5 replies
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  19. mamaupupup
    Mom-of-Two
    • 1 reply
    • 1.8k views
  20. Lfrost
    mikyraso
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    • 3.7k views
  21. Chrissy W.
    • 4 replies
    • 1.5k views
  22. VydorScope
    GFinDC
    • 14 replies
    • 2.1k views
  23. Mom-of-Two
    Bubba's Mom
    • 21 replies
    • 3.9k views
  24. mmcdaniels
    GottaSki
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    • 2.1k views
  25. kb27
    beachbirdie
    • 3 replies
    • 1.6k views
  26. Leanne1983
    kb27
    • 3 replies
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  27. StephanieL
    mommida
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  • Posts

    • Scott Adams
      It took me 2-3 years to feel like my gut recovered, and then I still had gluten ataxia issues for well over a decade.  This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi:    
    • Thelma Cadieux
      Good idea, but make sure she does not require lactose free cheese,it is common in celiac patients. 
    • pmarklesparkle
    • pmarklesparkle
      I was diagnosed with dermatitis herpetiformis and ultimately celiac disease in September 2024.  I am trying to navigate the world with celiac, unsuccessfully, still having dermatitis herpetiformis outbreaks.  Grocery shopping is difficult, shopping for toiletries is nearly impossible. Dining out is also a challenge. Can anyone recommend iPhone apps that will make these easier?  Thanks so much!
    • trents
      Welcome to the forum, @pmarklesparkle! Thanks for sharing your diagnostic journey as it may be helpful to others who are getting mixed results during the diagnostic phase. Kudos to the gastro NP who dug deeper and ordered the endoscopy/biopsy. You may also wish to investigate a low iodine diet to get a handle on your continued outbreaks of dermatitis herpetiformis.
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