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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Lkg5 replied to Amyinwyoming's topic in Gluten-Free Foods, Products, Shopping & Medications3Sprouts packaged roasted, salted nuts - says "made in a facility that processes wheat" - has anyone had a problem?
I never buy any nuts from a facility that processes wheat. It’s not worth the risk. Surprisingly, Trader Joe’s nuts do not come a factory that processes wheat, and I do not react to them. I am sensitive to gluten. -
- Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Test
If all testing is now completed you may want to let your doctor know that you are starting a gluten-free diet. If you symptoms go away on the diet it is further confirmation that you may have celiac disease, and/or non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a... -
- Scott Adams replied to Kwinkle's topic in Coping with Celiac Disease1
I’m so confused…
As long as the B Comlex is gluten-free, it should be helpful to you, especially since you're recently diagnosed and your villi are in the recovery process. You may need to look at further supplements as well, and it's a good idea for your doctor to check levels for many nutrients to see what deficiencies you might have. The most common nutrient deficiencies... -
- Scott Adams replied to RobHicks's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease6
Weak stomach digestion after undiagnosed celiacs
How long ago were you diagnosed? There are many symptoms and issues for those who are newly diagnosed, and recovery can take a while. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with... -
- Kwinkle posted a topic in Coping with Celiac Disease1I’m so confused…
As I mentioned before I’m pretty new to this. I’m about a month into being completely gluten-free. But I’m still having issues with fatigue, loss of appetite, and gas pain. I’ve started taking the B complex, and was hopeful, but that would help me get past especially the fatigue and the loss of appetite. But now I just read a more recent post where somebod...
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I never buy any nuts from a facility that processes wheat. It’s not worth the risk. Surprisingly, Trader Joe’s nuts do not come a factory that processes wheat, and I do not react to them. I am sensitive to gluten.
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By Scott Adams · Posted
If all testing is now completed you may want to let your doctor know that you are starting a gluten-free diet. If you symptoms go away on the diet it is further confirmation that you may have celiac disease, and/or non-celiac gluten sensitivity. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
By Scott Adams · Posted
As long as the B Comlex is gluten-free, it should be helpful to you, especially since you're recently diagnosed and your villi are in the recovery process. You may need to look at further supplements as well, and it's a good idea for your doctor to check levels for many nutrients to see what deficiencies you might have. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. -
By Scott Adams · Posted
How long ago were you diagnosed? There are many symptoms and issues for those who are newly diagnosed, and recovery can take a while. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi: -
As I mentioned before I’m pretty new to this. I’m about a month into being completely gluten-free. But I’m still having issues with fatigue, loss of appetite, and gas pain. I’ve started taking the B complex, and was hopeful, but that would help me get past especially the fatigue and the loss of appetite. But now I just read a more recent post where somebody is saying that the B complex is not necessarily good for us? I was very comfortable with the B complex because our bodies shed excess B vitamins. But now I just looked it up and B vitamins can cause gas and bloating. As I mentioned, that’s one of my biggest symptoms, and I also think it’s directly connected to my loss of appetite, which, of course is connected to my fatigue. I’m so confused I don’t really know what to do now?
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