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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- BertoleAmur replied to Rosyjo11's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Has anyone found Ozempic affected their symptoms?
I’ve been gluten-free for a while too, and I know how frustrating it can be when your body reacts unexpectedly. I haven’t personally experienced what you’re describing with Ozempic, but I did have a situation where I took a break from certain supplements and noticed my body felt a lot better. -
- Scott Adams replied to CeliacChica's topic in Related Issues & Disorders28Muscle Twitching
Two of our moderators @knitty kitty and @Wheatwacked know a lot more about nutrients and may be able to offer some more help, so hopefully they will chime in here.- 1
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- aperlo34 replied to CeliacChica's topic in Related Issues & Disorders28Muscle Twitching
Hi Scott, thanks for the reply. I’m currently taking 3000IU vitamin D3 centrum multivitamin 500mg vitamin C 1000mcg B12 naturemade softgel Omega 3 (for dry eyes) My latest labs for vitamins were D - 43.6 (range 30-100) B12 - 406 (range 232-1245) Folate - 11.4 (range >3.0) ferritin - 117 (30... -
- Yaya replied to CeliacChica's topic in Related Issues & Disorders28Muscle Twitching
I never had muscle twitching that I would relate to Celiac Disease (celiac disease). However, I now have Long Covid and muscle twitching, burning, and other issues cropped up with that. Predating all was restless leg syndrome (RLS). Are you talking about RLS? I've had that since '99. It gets progressively worse.- 1
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- trents commented on Scott Adams's article in Kids and Celiac Disease1What Parents Need to Know About Raising a Child with Celiac Disease (+Video)
What I liked: 1. Narrator had a good, clear speaking voice and smiled pleasantly. 2. Good practical information that was logically organized and succinct. What I didn't like: 1. Narrator was obviously reading from a teleprompter script, including topic headers, which seemed very wooden and unnatural. Almost like listening to a Joe Biden...- birthday
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Posts
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By BertoleAmur · Posted
I’ve been gluten-free for a while too, and I know how frustrating it can be when your body reacts unexpectedly. I haven’t personally experienced what you’re describing with Ozempic, but I did have a situation where I took a break from certain supplements and noticed my body felt a lot better. -
By Scott Adams · Posted
Two of our moderators @knitty kitty and @Wheatwacked know a lot more about nutrients and may be able to offer some more help, so hopefully they will chime in here. -
Hi Scott, thanks for the reply. I’m currently taking 3000IU vitamin D3 centrum multivitamin 500mg vitamin C 1000mcg B12 naturemade softgel Omega 3 (for dry eyes) My latest labs for vitamins were D - 43.6 (range 30-100) B12 - 406 (range 232-1245) Folate - 11.4 (range >3.0) ferritin - 117 (30-400) magnesium - 2.3 (1.6-2.3) Calcium - 9.9 (8.7-10.2) I am 29 and really struggling with this emotionally, I was caught by surprise 2.5months ago with this dx and pretty much no symptoms that I really knew of besides low ferritin. When I first met with the GI doctor in July and he ordered the endoscopy/colonoscopy, that was around when the twitching started. I’m unsure if it’s the anxiety of it all (I have been consistently freaking out since the scopes were ordered, losing sleep, obsessively googling etc.) or if it’s celiac related. I’m horrified that I might have something else wrong with me. Additionally, I’ve been getting some mixed opinions - dietician told me to stop the additional b12 because my multi had b12, but I see online that some people think b12 levels should be well over 500. Some other things that I’ve experienced since I went gluten free are more “sinus” headaches, facial pressure, some cramping in my left side (could be postural problems I’m dealing with) and dry eyes - my eye doctor has me on some eyes drops that really help and this is a work in progress. And no my mouth isn’t dry too 😅 I’m absolutely beside myself with fear of other AI diseases and have no one I can really turn to (besides online) that has dealt with this. I have no idea what’s in my mind and what is a real symptom anymore because I’m so hyper aware of every sensation in my body! Thank you so much in advance for any input/guidance.
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I never had muscle twitching that I would relate to Celiac Disease (celiac disease). However, I now have Long Covid and muscle twitching, burning, and other issues cropped up with that. Predating all was restless leg syndrome (RLS). Are you talking about RLS? I've had that since '99. It gets progressively worse.
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By Scott Adams · Posted
Hello @aperlo34, what types of supplements are you taking? Your symptoms could be related to vitamin/mineral deficiencies. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium. Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.
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