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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease5My journey is it gluten or fiber?
In general if it is certified gluten-free serious steps are taken to avoid cross-contamination, but things can still happen in a shared facility, and gluten-free certification isn't a guarantee, as we've seen recently: -
- Scott Adams commented on Scott Adams's article in Skin Problems and Celiac Disease3
Celiac Disease and Skin Disorders: Exploring a Genetic Connection
I had a variety of skin issues while growing up that were likely related to celiac disease, although I did not get full blown celiac disease until I was in my early 20's. I had topical dermatitis in certain areas, blepharitis (eyelids), and a patch of dermatitis herpetiformis on the back of my right-thumb area. I do believe that many people who have the genetic...- atopic dermatitis
- autoimmune diseases
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- Scott Adams replied to EndlessSummer's topic in Related Issues & Disorders3
Dizziness after eating green beans?
As already mentioned here, and based on your description, this sounds like a serious and specific reaction to green beans. While your prior allergy tests didn't flag legumes, it's possible to develop a new allergy at any time. The symptoms you describe—extreme dizziness, racing heart, sweating, and itching—are consistent with a systemic allergic response, no... -
- Scott Adams commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease7
Celiac Disease Patients Face Higher Risk of Systemic Lupus
I recommend you start a thread on this topic in our forum, rather than comment on an article about Lupus.- celiac
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- Eric.C posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Slow healing?
I was diagnosed with celiac disease in October last year and followed a strict gluten free diet since then. My dietitian told me that my diet looks absolutely perfect and I can’t think of many possible ways to get cc as I am very strict. However, when I did my check up gastroscopy a year later my healing only showed a slow improvement going from marsh 3b...
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By Scott Adams · Posted
In general if it is certified gluten-free serious steps are taken to avoid cross-contamination, but things can still happen in a shared facility, and gluten-free certification isn't a guarantee, as we've seen recently: -
By Scott Adams · Posted
As already mentioned here, and based on your description, this sounds like a serious and specific reaction to green beans. While your prior allergy tests didn't flag legumes, it's possible to develop a new allergy at any time. The symptoms you describe—extreme dizziness, racing heart, sweating, and itching—are consistent with a systemic allergic response, not just an intolerance. Given your history of celiac disease and tree nut allergies, your immune system is already predisposed to sensitivities. It is crucial to stop consuming green beans immediately and consult an allergist. They can perform more specific testing and may prescribe an epinephrine auto-injector for emergency use, as this type of reaction can be unpredictable and potentially escalate. -
I was diagnosed with celiac disease in October last year and followed a strict gluten free diet since then. My dietitian told me that my diet looks absolutely perfect and I can’t think of many possible ways to get cc as I am very strict. However, when I did my check up gastroscopy a year later my healing only showed a slow improvement going from marsh 3b - 3a. Is this normal healing for a year? My main symtoms pre- diagnosis was joint/back pain, poor immune system and stomach problems (especially in the morning). Joint pain and the immune system improved almost instantly but the stomach problems still persist (but has gotten better). For reference I am a 21 year old male and both my ttg levels were normal after just 4 months and also the test for calkprotekin. My diet consists of 99% home cooked meals in a kitchen free from gluten.
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By xxnonamexx · Posted
I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it. -
I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms. I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked. My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety). I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested. He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac. Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves. It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8). At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis. In my own case I had acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking), odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof. As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms. I have much to be grateful for. Cristiana
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