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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- Scott Adams replied to MichelleGrant's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Months of diarrhea - Testing question
Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
- Scott Adams replied to VinnieVan's topic in Introduce Yourself / Share Stuff14
Question
Have you been able to see a doctor or rheumatologist about this? Inflammation like that could point to something like celiac complications, an autoimmune response, or even reactive arthritis, and you deserve relief and answers. In the meantime, gentle heat/cold therapy or anti-inflammatory foods and over the counter meds might help a little, but I hope you... -
- trents replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Confused about test results.
None of your test results suggest celiac disease but your symptoms suggest either celiac or NCGS. There is another test mode for celiac disease that might be pursued and that is an endoscopy with biopsy of the small bowel lining to check for the damage caused by celiac disease inflammation. This is the gold standard test for celiac disease and is usually... -
- Nikki03 replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Confused about test results.
This is what the exact results say… Immunoglobulin A Qn -high 419 off chart Deamidated Gliadin ABS, iga -2 (normal range) T-transglutaminase (ttg) igg- 5 (normal range) T- transglutaminase (ttg) iga -2 (normal range) I was still consuming gluten when this test was done with tons of symptoms such as sick to stomach and throwing u... -
- Nikki03 replied to Nikki03's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Confused about test results.
This is what the exact results say… Immunoglobulin A Qn -high 419 off chart Deamidated Gliadin ABS, iga -2 T-transglutaminase (ttg) igg- 5 T- transglutaminase (ttg) iga -2 I was still consuming gluten when this test was done with tons of symptoms such as sick to stomach and throwing up daily no matter what I eat, random rashes a...
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By Scott Adams · Posted
Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
By Scott Adams · Posted
Have you been able to see a doctor or rheumatologist about this? Inflammation like that could point to something like celiac complications, an autoimmune response, or even reactive arthritis, and you deserve relief and answers. In the meantime, gentle heat/cold therapy or anti-inflammatory foods and over the counter meds might help a little, but I hope you can get proper medical support soon. -
None of your test results suggest celiac disease but your symptoms suggest either celiac or NCGS. There is another test mode for celiac disease that might be pursued and that is an endoscopy with biopsy of the small bowel lining to check for the damage caused by celiac disease inflammation. This is the gold standard test for celiac disease and is usually done even when blood antibody test scores are positive. However, you might not find a physician willing to do the procedure in the absence of negative celiac antibody test scores. The absence of any positive celiac antibody test scores suggests that damage is not occurring to the lining of the small bowel. The endoscopy/biopsy would involve a referral to a GI doc. One question about your rash. Are there pustules in the bumps? This is characteristic of the rash associated with celiac disease known as dermatitis herpetiformis. My suggestion for you at this point would be to trial the gluten free diet for three months and see if your symptoms improve. If so, you likely have NCGS. If not, then you need to look in a different direction for answers to your health issues. If you do go on a gluten free diet, realize that you would need to go back on gluten for several weeks if you ever want to get tested for celiac disease again. Current guidelines for the "gluten challenge" recommend the daily consumption of at least 10g of gluten (the amount in about 4-6 slices of wheat bread) for at least two weeks prior to testing. But I would certainly give it more than two weeks to be certain of valid testing. I would also talk to your physician about your high immunoglobulin A Qn score. It may mean nothing but it can also be an indicator of some potentially serious health issues. You should google it. Here is a primer for getting off to a good start with eating gluten free:
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This is what the exact results say… Immunoglobulin A Qn -high 419 off chart Deamidated Gliadin ABS, iga -2 (normal range) T-transglutaminase (ttg) igg- 5 (normal range) T- transglutaminase (ttg) iga -2 (normal range) I was still consuming gluten when this test was done with tons of symptoms such as sick to stomach and throwing up daily no matter what I eat, random rashes and itching, painful joints, no energy and fatigue, gas, constapation, bloating, just overall unwell.
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This is what the exact results say… Immunoglobulin A Qn -high 419 off chart Deamidated Gliadin ABS, iga -2 T-transglutaminase (ttg) igg- 5 T- transglutaminase (ttg) iga -2 I was still consuming gluten when this test was done with tons of symptoms such as sick to stomach and throwing up daily no matter what I eat, random rashes and itching, painful joints, no energy and fatigue, gas, constapation, bloating, just overall unwell.
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