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Post Diagnosis, Recovery & Treatment of Celiac Disease

Discussions related to the recovery process after you've been diagnosed.


8,767 topics in this forum

  1. hilly
    cristiana
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  2. BNGed8
    Scott Adams
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    Wheatwacked
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    Wheatwacked
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    Scott Adams
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    Scott Adams
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    cristiana
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    Scott Adams
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  12. carolcat
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    cristiana
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    Wheatwacked
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    Wheatwacked
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    jeema
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    Beverage
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    Helen Vajk
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    Scott Adams
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  21. Integrous
    ling27
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  22. Ginger38
    Scott Adams
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    McNeill
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    Scott Adams
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    trents
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    Scott Adams
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    Scott Adams
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  • Posts

    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children!  
    • Scott Adams
      The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal, although this may not be the case for everyone. This article may be helpful:    
    • Scott Adams
      For people with celiac disease hidden gluten in their diets is the main cause of elevated Tissue Transglutaminase IgA Antibodies (tTG-IgA), but there are other conditions, including cow's milk/casein intolerance, that can also cause this, and here is an article about the other possible causes:    
    • KikiSa
      Thank you very much for your response Scott. Apparently the second TTG Iga test was ten times the normal. I’m just surprised that there can be such a huge difference between the test results. It concerns me also that the lab has just recently changed their reporting. There are not really many/ any symptoms anymore. I was suspicious about celiac several years ago, and had my child tested then (it was negative then), so we never thought further about it as the pediatrician continued to tell us his shorter stature must be genetic even though we are average height parents. Also I did not have as much knowledge at the time. I guess we will know more after the endoscopy. It pains me to think...
    • PA Painter
      Yes, excessive neuropathy and a debilitating headache, spasms, cramps, tremors. Very much what you would expect from Parkinson or MS, only it coincides with the food and resolves 100% with a whole food AND gluten free diet. The gluten free diet was not enough on it's own I had to eliminate all processed food as well. They did the biopsy a year ago. 
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