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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- trents replied to ShRa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Son recently got diagnosed with Celiac disease
Yes, there are slim chances that his positive antibody ttg-ab IGA score is due to something besides celiac disease. But usually when that is the case, the antibody score is a weak positive. But consider the dilemma you will be in if your son goes gluten free now and there is a good amount of time that elapses before the biopsy (if the GI specialist... -
- ShRa replied to ShRa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Son recently got diagnosed with Celiac disease
Thanks @trents We are still working on accepting that he has to be gluten free all his life. And this reality is also hitting him badly. As this was only the serum based results and biopsy hasn't been done yet, are there any slim chances that he might NOT have Celiac disease? I've messaged his doctor to confirm one more time if he should go gluten... -
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- jjiillee posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Daughter waiting for appointment
My daughter,17 was getting stomach pains off and on for months. Went to pediatrician, bloodwork came back showing TTG-IGA 5.3 weak positive. Told to follow up with gastroenterology, continue to eat gluten. Can’t get appoint until end of Jan (we are on waitlist also), called back because she was still getting pains and nurse said to let her try to go gluten f... -
- Pat Denman replied to GeordieGeezer's topic in Food Intolerance & Leaky Gut18Anybody else have a similar experience...theories welcome as its something which i dont really understand.....
Many years ago, there was a doctor who recommended never eating the same food within 5 days. Also recommended greens only 2X per week. Can't remember his name. Dx Celiac at age 87 by self as where I live in the northwest of Idaho, there is no medical insurance which covers Celiac disease or even will pay for tests!
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0December 11, 2024 12:00 AM
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Posts
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Yes, there are slim chances that his positive antibody ttg-ab IGA score is due to something besides celiac disease. But usually when that is the case, the antibody score is a weak positive. But consider the dilemma you will be in if your son goes gluten free now and there is a good amount of time that elapses before the biopsy (if the GI specialist wants to do that) and the biopsy is negative. You then will be presented with conflicting test results. Which will you believe? From the article I linked in my first post, concerning the reliability of the ttg-ab IGA serum test for celiac disease: The test is estimated to have a sensitivity of approximately 90%, which means that it correctly identifies 90% of people with celiac disease. It also has a high specificity of around 95%, which means that it correctly identifies 95% of people who do not have celiac disease.
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Thanks @trents We are still working on accepting that he has to be gluten free all his life. And this reality is also hitting him badly. As this was only the serum based results and biopsy hasn't been done yet, are there any slim chances that he might NOT have Celiac disease? I've messaged his doctor to confirm one more time if he should go gluten free now or wait until he sees specialist. Thanks.
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My daughter,17 was getting stomach pains off and on for months. Went to pediatrician, bloodwork came back showing TTG-IGA 5.3 weak positive. Told to follow up with gastroenterology, continue to eat gluten. Can’t get appoint until end of Jan (we are on waitlist also), called back because she was still getting pains and nurse said to let her try to go gluten free for a few weeks and see if she feels better. She does feel better. My question is should I let her stay gluten free until the end of January and see what the Gastro says? I know she will have to be eating gluten before she has any further testing, but that is likely months away at this point.
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By Pat Denman · Posted
Many years ago, there was a doctor who recommended never eating the same food within 5 days. Also recommended greens only 2X per week. Can't remember his name. Dx Celiac at age 87 by self as where I live in the northwest of Idaho, there is no medical insurance which covers Celiac disease or even will pay for tests! -
Thank you for your valuable feedback; calling to make an appt. for myself today!
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