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Post Diagnosis, Recovery & Treatment of Celiac Disease
Discussions related to the recovery process after you've been diagnosed.
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Recent Activity
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- trents replied to VinnieVan's topic in Introduce Yourself / Share Stuff7Question
endomys is, aka, "EMA" and is a celiac disease antibody test. It was negative. gliaiga is, aka, IGP-IGA, is also a celiac disease antibody test. It was negative. TRANSGLUA is, aka, TTG-IGA, another celiac disease antibody test. It was in normal range. tranigg is, aka, TTG-IGG, still another celiac disease antibody test. It was high, or above... -
- fritz2 replied to VinnieVan's topic in Introduce Yourself / Share Stuff7Question
I'm 70, had gut issues my whole life. 15 years ago my grandchild was diagnosed with celiac. Since I had a constant either constipation or diarrhea and what the doctors thought was fibromyalgia and other issues I decided to see what happens if I quit gluten. I got a lot better. BTW, 30 years ago I had head & neck cancer, the radiation destroyed my... -
- Tuba1971 replied to Pat B's topic in Gluten-Free Foods, Products, Shopping & Medications5FDA says that most drugs are gluten-free???
I had been glutened from somewhere since I pretty much make all my food from scratch. I had to have an endoscopy which should gluten damage, had blood work which also indicated high gluten. 4 years ago when I had these tests my gluten levels were all in good alignment. It comes down to my levothyroxin accord brand that must have gluten in it. I switched to... -
- PA Painter replied to PA Painter's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2NCGS Diagnosis
That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement... -
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- Viroval replied to Nicbent35's topic in Related Issues & Disorders133 year old gluten intolerance?
Thanks for sharing this detailed explanation. It’s really helpful to understand the differences between celiac disease and gluten sensitivity. I had no idea that gluten withdrawal could feel similar to addiction, and it’s great to have that context when considering how it affects people. It’s also good to know how important it is to continue eating glute...
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endomys is, aka, "EMA" and is a celiac disease antibody test. It was negative. gliaiga is, aka, IGP-IGA, is also a celiac disease antibody test. It was negative. TRANSGLUA is, aka, TTG-IGA, another celiac disease antibody test. It was in normal range. tranigg is, aka, TTG-IGG, still another celiac disease antibody test. It was high, or above normal range. immaqnt is, I believe, what is also known as "total IGA" and at 160, looks to be in normal range since it wasn't flagged otherwise. This is a test for IGA deficiency. If someone is IGA deficient then all other IGA test scores cannot be trusted as being accurate. You are not IGA deficient. Here is a primer explaining the various tests that can be used to diagnose celiac disease: Celiac disease blood antibody testing is not valid when someone has been gluten free or eating low gluten for a significant period of time. The IGA tests are more specific for celiac disease than are the IGG tests but your slightly high TTG-IGG test score could reflect that you have celiac disease and have had low level exposure to gluten over time or a recent exposure. You could also have NCGS (Non Celiac Gluten Sensitivity).
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I'm 70, had gut issues my whole life. 15 years ago my grandchild was diagnosed with celiac. Since I had a constant either constipation or diarrhea and what the doctors thought was fibromyalgia and other issues I decided to see what happens if I quit gluten. I got a lot better. BTW, 30 years ago I had head & neck cancer, the radiation destroyed my thyroid. I suffer from chronic fatigue and have to take synthroid. A few months ago, I bought a bottle of Ice water, I was thirsty and all they had at the motel was this. It said sugar free and had a bunch of vitamins. I couldn't read the fine print so I thought it's safe, so I bought several bottles (it had sucralose and maltodextrin in it). I thought one per day would be ok and it absolutely was delicious. In the meantime, my wife found some links and bratwurst for breakfast, we didn't know it had wheat in it and we picked up a half gallon of her favorite ice cream and unknown to us they had changed the formula and added wheat. I had several meals and several bottles before I realized something was wrong. Did all the sugar add to the issue? In a day, I wasn't feeling well, my joints started swelling. In a couple days, I thought sure I had gout in both hands. In three days, I needed help to stand up or sit down, the pain was extreme. I went to the emergency room. They took blood and gave me cholchistine to alleviate the gout, it did nothing. I didn't get a report on the test. The next week the doctor ordered more blood tests and it's all acronyms but a couple items on celiac were listed as high. The nurse I asked about the report had no clue and the RA was negative. This has been ongoing for over a month and only now am I able to use my hands, but it's painful. Under the Celiac labs headline it says: endomys-Negat gliaiga- 5 gliaigg- 1 TRANGLUA -3 tranigg- 8 (high) immaqnt- 160 Rheumatoid factor <12 Thyroid stimulating hormone: 2.81 Does anyone know what this means?
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I had been glutened from somewhere since I pretty much make all my food from scratch. I had to have an endoscopy which should gluten damage, had blood work which also indicated high gluten. 4 years ago when I had these tests my gluten levels were all in good alignment. It comes down to my levothyroxin accord brand that must have gluten in it. I switched to synthroid 3 weeks ago and have been doing much better and am able to sleep at night again.
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By PA Painter · Posted
That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement. -
Thanks for sharing this detailed explanation. It’s really helpful to understand the differences between celiac disease and gluten sensitivity. I had no idea that gluten withdrawal could feel similar to addiction, and it’s great to have that context when considering how it affects people. It’s also good to know how important it is to continue eating gluten for accurate testing. I’ll keep all of this in mind!
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