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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Scott Adams replied to ABP2025's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11Guidance on next steps after the lab tests
So keep eating gluten daily, lots of it, until all celiac disease screening is completed. A negative biopsy would not rule out NCGS. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
- susan connolly replied to MrsT827's topic in Gluten-Free Foods, Products, Shopping & Medications87Barilla Gluten Free Pasta makes me sick
Hi I just had the same problem with Maninis Am gluten-free so I am very careful. It was delicious but big tummy ache and swelling. I was soooo careful. Nothing different but the tortellini. Maybe cross contamination of some kind ?. Best Susan- barilla
- gluten free
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- trents replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26What should I do with these test results?
Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure. -
- Jack Common replied to Jack Common's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms26What should I do with these test results?
I haven't seen any information there are other genes which trents wrote but what if I spend money to do this test and the results show I have these genes. It will mean nothing. I can have these genes and not have celiac disease if I know it right. Because biopsy is not available, unfortunately, the most reliable methods are blood tests, in my opinion... -
- cristiana commented on Debado's blog entry in Debado10Gluten migranes at night
The first symptoms I had of coeliac disease were migraines. I think your doctor needs to test you for coeliac disease. The fact you are having migraines at night is interesting, but I never used to drink enough and my headaches were worse when I woke up in the morning. Dehydration was also a big cause for me.
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By susan connolly · Posted
Hi I just had the same problem with Maninis Am gluten-free so I am very careful. It was delicious but big tummy ache and swelling. I was soooo careful. Nothing different but the tortellini. Maybe cross contamination of some kind ?. Best Susan -
Sounds like a good plan, Jack. Correct about the genes. About 40% of the general population possess the genetic potential to develop celiac disease but only about 1% of the general population actually develops celiac disease. So, genetic testing is used as a rule out measure.
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By Jack Common · Posted
I haven't seen any information there are other genes which trents wrote but what if I spend money to do this test and the results show I have these genes. It will mean nothing. I can have these genes and not have celiac disease if I know it right. Because biopsy is not available, unfortunately, the most reliable methods are blood tests, in my opinion. So I'm gonna eat gluten for another two months and then do the test again. It will be 12 weeks eating food with gluten so some symptoms might appear. Now, I don't have any except fogginess but I'm a software developer so it could be normal for me. Talking about how much food containing gluten to eat, I'm eating 6 slices of wheat bread per day (each slice weighs around 35 grams). I think it's much more than other people eat doing a gluten challenge. Before a gluten free diet I had symptoms like some food intolerance, diarrhea, bloating, belching. However, I also had giardiasis and after treating it I started a gluten free diet so it's unclear whether I had this symptoms because of eliminating gluten or this parasite. The symptoms for both are very similar. So I think it was this parasite because two years ago and before I didn't have these symptoms and I always ate gluten freely. Am I thinking okay or should I consider/do something else? I appreciate any suggestions. -
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By knitty kitty · Posted
Welcome to the forum, @Debado, Migraines at night can be caused by high levels of histamine. Histamine Intolerance can cause physical symptoms like migraines. Foods contain histamine. Our bodies make histamine, an important neurotransmitter. Our bodies naturally produce more histamine at night as part of our circadian rhythm, our sleep-wake cycles. Some foods like gluten and nuts contain high histamine themselves or trigger our bodies to produce more histamine. A low histamine diet is helpful, cutting out high histamine foods and histamine-release triggering foods. Our bodies can breakdown a certain amount of histamine, but sometimes our bodies cannot keep up with the amount of histamine needing to be broken down, and can be overwhelmed by the amount of histamine resulting in Histamine Intolerance and health problems like migraines. Vitamins C, B12, Pyridoxine B6 and thiamin B1 help lower histamine levels. Our bodies use these vitamins to make an enzyme DOA (diamond oxidase) that breaks down histamine. DAO from beef or pork kidney is an over-the-counter supplement that can be taken. Riboflavin B2 is very helpful for relieving migraines. Have you been diagnosed with Celiac Disease or suspect you have it? Happy Holidays!
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