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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,143 topics in this forum

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    cristiana

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  • Recent Activity

    1. - ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Waiting on Blood test results…

    2. - ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Waiting on Blood test results…

    3. - trents replied to Jason Hi's topic in Doctors
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      Need Advice on Doctors

    4. - Jason Hi replied to Jason Hi's topic in Doctors
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      Need Advice on Doctors

    5. - ChrisSeth replied to ChrisSeth's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      Waiting on Blood test results…


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  • Posts

    • ChrisSeth
      Test results came back for everything that was tested now. Cholesterol is off the charts high. Not sure if that’s related to celiac, I have no idea how it could be so high. Also tested positive for H pylori  infection… is there a link to celiac and H pylori? Or am I just experiencing symptoms of the H pylori infection? 
    • ChrisSeth
      I’m reading that some sites list a high Immunoglobulin A result for my age above 300, another site says above 356, and other sites are saying above 400. I don’t know what to make of this result 🤷‍♂️
    • trents
      You got some bum steers my friend. I have little confidence that you can trust your test results as differentiating between NCGS and celiac disease. And I think you would be much more likely to have gotten that note you need if you had been diagnosed with celiac disease. But believe me, I understand the predicament you are in with regard to the risks of repeating the gluten challenge. We have heard this story many times on this forum. People experiment with the gluten free diet before getting an official diagnosis and then cannot tolerate the gluten challenge later on when they seek an official diagnosis.
    • Jason Hi
      For the upper gastrointestinal endoscopy, they said 7 days of gluten. So I did 8...fast food and Krispy Kreme doughnuts. For the earlier blood test, the younger doctor said I didn't have to. My immune system went down, I was in the bathroom a lot, and as my wife said my brain wasn't braining.
    • ChrisSeth
      Thanks guys. I just got my results but I don’t know what they mean…  celiac disease reflex panel Immunoglobulin A  normal range 66-433  my results are a score of 358. Is this normal? I have no idea what to make of it…
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