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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • Scott Adams
      For someone with celiac disease who might have extreme villi damage the term "cross-reactivity" gets thrown around a lot.  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.
    • Scott Adams
      This test was positive according to the original post, so the next normal step would be a biopsy: TTG IGG - 9 U/mL (0-5 range) @Brown42186 Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • trents
      Connie, spinach is high in oxalates. Many celiacs do not tolerate oxalates well.  If you are still battling dermatitis herpetiformis, you may want to look into a low iodine diet as well as reviewing possible sources of gluten cross contamination.
    • Scott Adams
      Do you eat outside your home, especially in restaurants, as this can be a source of cross-contamination. If you need to take dapsone still your diet may not be 100% gluten-free. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • Connie Smitj
      I was diagnosed 5 years ago. I also have celiac rash which is no longer an issue thanks to maintenance dose of dapsone.  I ate spinach with lemon juice  and had terrible pain after. My mother whom I suspect had undiagnosed celiac disease developed a duodenal ulcer that turned into a sarcoma late in life . My celiac clinic suggests seeing my family doctor.
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