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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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  • Posts

    • knitty kitty
      Yes, though histamine itself may not taste salty, histamine is present in mucus and tears which contain sodium chloride because salt is a great antimicrobial.  
    • PlanetJanet
      I was just reading about Miracle Whip on the forum here.  I, too, have a reaction to modified food starch, even if something is labeled gluten free.  I was Googling about it, and apparently it can be inflammatory because of the method of manufacturing, not just whether or not it has wheat in it.  I DO NOT eat anything with maltodextrin in it, either, even if labeled gluten free.  It can be made from wheat or corn, apparently, but you can't always tell.  Gets me every time, and also now becoming aware of the modified food starch.  I am getting worse the older I get. I am 64 now -- this gluten reaction started in me when I was 57 or so.  Started slowly, but after starting to track my food intake... became painfully obvious.  I always loved bread, all kinds.  I could eat anything.  Not anymore.  Wheat thins gave me a blow-out.  Didn't want to believe it.  Tried again...OMG.  Serious blow-out while I was out walking at a park--people all over the place.  I didn't know until I went in the restroom.  OMG.  Wheat thins have wheat, obviously, and also barley malt syrup or flour or something.  A double WHAMMY.  Then I knew.  No more gluten!  And it's so challenging to do that.  Also, I probably have microscopic colitis.  No more NSAIDS, muscle relaxants, Celebrex (celecoxib), SSRI's, caramel color, maltodextrin, modified food starch, vitamins with that whitener chemical, and many other pills.  Doctors always said to increase fiber intake!  Take Metamucil!  OMG it has maltodextrin in it.  Back before I knew to avoid it.  Take anything your "provider" says with a grain of salt.  You know your body better than anyone else.
    • PlanetJanet
      After looking at Google images, the spleen is on the upper left abdomen, too!  An organ, part of the lymphatic system for immune function.  A filter.  Wonder how this relates to gluten sensitivity?
    • PlanetJanet
      Hey, mistake in my post,  pancreas TAIL is on the left side.  Head is middle back of belly,
    • PlanetJanet
      Hello, everyone, This upper left side pain is interesting to me.  I have this same pain almost all the time.  Started 2009 when I got diverticulitis for the first time.  Then had left ovarian cyst removed and a diagnosis of endometriosis all over inside.  Been attempting gluten-free since 2018.  It's not perfect, but still have that left sided pain.  Like up under the rib cage.  I believe the pancreas head is on that side, so I often wonder if I have a tumor or something there.  But it could also be an endometriosis adhesion in my belly.  I never got scraped.
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