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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- NavyMom replied to Cathijean90's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease7I’m terrified it’s too late for me😭
Hi CathiJean, Wipe those tears my friend. Finding out that you have celiac just gave you the cheat code on how to start feeling better! It may feel like a loss right now, but honestly within 6 months you will start feeling better. Within a year you will look back and wonder how in the world did I survive feeling like that for what feels like a lifetime... -
- trents replied to englishbunny's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Negative biopsy and seeking doctor recs in Los Angeles
If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid. -
- englishbunny replied to englishbunny's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3Negative biopsy and seeking doctor recs in Los Angeles
it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free. I didn't have any clue about the celiac thing then. Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting... -
- trents replied to englishbunny's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Negative biopsy and seeking doctor recs in Los Angeles
Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?- 1
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- englishbunny posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Negative biopsy and seeking doctor recs in Los Angeles
I'm upset & confused and really need help finding a new gastro who specializes in celiac in California. Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which...
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Hi CathiJean, Wipe those tears my friend. Finding out that you have celiac just gave you the cheat code on how to start feeling better! It may feel like a loss right now, but honestly within 6 months you will start feeling better. Within a year you will look back and wonder how in the world did I survive feeling like that for what feels like a lifetime? You mentioned 15 years, that's about how long I have been really ill as well. I had told every doctor I saw that I kept getting sick, infections, hair loss, joint pain, etc. and nobody would listen to me until I turned 45. I went in for a colonoscopy and the doc says how often do you have bowel movements and I said usually between 10-15 times a...
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If you have been eating the gluten equivalent of 4-6 slices of wheat bread daily for say, 4 weeks, I think a repeat blood test would be valid.
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By englishbunny · Posted
it did include Total Immunoglobin A which was 135, and said to be in normal range. when i did the blood test in January I would say I was on a "light' gluten diet, but def not gluten free. I didn't have any clue about the celiac thing then. Since then I have been eating a tonne of gluten for the purpose of the endoscopy....so I'm debating just getting my blood test redone right away to see if it has changed so I'm not waiting another month... -
Welcome to the forum, @englishbunny! Did your celiac panel include a test for "Total IGA"? That is a test for IGA deficiency. If you are IGA deficient, other IGA test resultls will likely be falsely low. Were you by any chance already practicing a reduced gluten free diet when the blood draw was done?
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By englishbunny · Posted
I'm upset & confused and really need help finding a new gastro who specializes in celiac in California. Also will welcome any insights on my results. I tested with an isolated positive for deamidated IGA a few months ago (it was 124.3, all other values on celiac panel <1.0), I also have low ferritin and Hashimotos. Mild gastro symptoms which don't seem to get significantly worse with gluten but I can't really tell... my main issues being extreme fatigue and joint pain. The celiac panel was done by my endocrinologist to try and get to the bottom of my fatigue and I was shocked to have a positive result. Just got negative biposy result from endoscopy. Doctor only took two biopsies...
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