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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- knitty kitty replied to Kiwifruit's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Years of testing - no real answers
Welcome to the forum, @Kiwifruit, I agree further testing is needed. Disaccharidase deficiency is a symptom of Celiac disease. On your test results, this line "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low. People with low or deficient Total IgA should also have DGP IgG test done. Low Total IgA means you are making... -
- trents replied to hmkr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Celiac Test Results - Thoughts?
Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing... -
- hmkr replied to hmkr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Celiac Test Results - Thoughts?
Ok, interesting. Not what I was thinking that meant. I'm reading the article and trying to understand. I see this “According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/b... -
- trents replied to hmkr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Celiac Test Results - Thoughts?
It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above. -
- hmkr replied to hmkr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Celiac Test Results - Thoughts?
Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it!
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By knitty kitty · Posted
Welcome to the forum, @Kiwifruit, I agree further testing is needed. Disaccharidase deficiency is a symptom of Celiac disease. On your test results, this line "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low. People with low or deficient Total IgA should also have DGP IgG test done. Low Total IgA means you are making low levels of tTg IgA as well, leading to false negatives or "weak positives". Maybe a DNA test for known Celiac genes. Anemia, diabetes, and thiamine deficiency can cause test results like these. Get checked for B12 deficiency anemia and have your iron (ferritin) checked. Vitamin D deficiency is common, too. Might be time to find a gastrointestinal doctor who is more familiar with diagnosing Celiac Disease. Best wishes on your journey! Please keep us posted on your progress. -
Yes, there is a trend in the medical community to forego the endoscopy/biopsy and grant an official celiac diagnosis based on high tTG-IGA antibody scores alone. This trend started in the UK and is spreading to the USA medical community. And yes, 5-10x the normal level is what I have been seeing as the threshold as well. Here is the relevant section dealing from the article above dealing with the importance of the total IGA test being ordered. See the embedded attachment.
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Ok, interesting. Not what I was thinking that meant. I'm reading the article and trying to understand. I see this “According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy” My IgG is 90, which is 6 times. So to me that means it's highly likely I do have it.
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It just means you aren't IGA deficient, i.e., that IGA deficiency cannot have given you artificially low scores in the individual IGA celiac antibody tests. This is explained in the article Scott linked above.
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Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it!
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