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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,125 topics in this forum

  1. Avalon451
    Skylark

    Clueless-- What's Positive About These Labs?

    By Avalon451, Last action:
    • 4 replies
    • 1.2k views
    • Skylark
    • Skylark
  2. Mom-of-Two

    New- Understanding Labs

    By Mom-of-Two, Last action:
    • 12 replies
    • 2k views
    • Mom-of-Two
    • Mom-of-Two
  3. abbycat1
    Bubba's Mom

    How Long Until gluten-free Diet Helps My Symptoms?

    By abbycat1, Last action:
    • 7 replies
    • 7.5k views
    • Bubba's Mom
    • Bubba's Mom
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  4. addis001
    mushroom

    Colonoscopy

    By addis001, Last action:
    • 7 replies
    • 2k views
    • mushroom
    • mushroom
  5. flisleshnitz
    frieze

    Best Tests For Celiac?

    By flisleshnitz, Last action:
    • 2 replies
    • 1.1k views
    • frieze
    • frieze
  6. sillysongbird
    mushroom

    Biopsy And Blood Test Results Are Different

    By sillysongbird, Last action:
    • 3 replies
    • 1.5k views
    • mushroom
    • mushroom
  7. 3groovygirls
    IrishHeart

    Promethius Testing?

    By 3groovygirls, Last action:
    • 2 replies
    • 1.5k views
    • IrishHeart
    • IrishHeart
  8. matt6965
    ravenwoodglass

    New Here Horrible Left Abdominal Pain

    By matt6965, Last action:
    • 1 reply
    • 2k views
    • ravenwoodglass
    • ravenwoodglass
  9. benj
    eatmeat4good

    Gluten Free For 2 Weeks And Feel Great - Do I Need To Get Tested?

    By benj, Last action:
    • 1 reply
    • 1.1k views
    • eatmeat4good
    • eatmeat4good
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  11. addis001

    90 Percent Sure, Going To Gi Monday

    By addis001, Last action:
    • 5 replies
    • 1.1k views
    • addis001
    • addis001
  12. myruin

    False Negative Blood Result?

    By myruin, Last action:
    • 0 replies
    • 836 views
    • myruin
    • myruin
  13. sarahw
    mushroom

    Genetic Testing

    By sarahw, Last action:
    • 4 replies
    • 1.3k views
    • mushroom
    • mushroom
  14. Twitch
    mushroom

    How Common Are False Negatives

    By Twitch, Last action:
    • 1 reply
    • 1.3k views
    • mushroom
    • mushroom
  15. Twitch

    Are These Celiac Symptoms?

    By Twitch, Last action:
    • 13 replies
    • 3.8k views
    • Twitch
    • Twitch
  16. Finally-45
    cougie23

    Too Old For A Diagnosis? 1 2

    By Finally-45, Last action:
    • 27 replies
    • 6.4k views
    • cougie23
    • cougie23
  17. Booghead
    nora-n

    Thyroid Test Results

    By Booghead, Last action:
    • 12 replies
    • 5.3k views
    • nora-n
    • nora-n
  18. hilarypf
    researchmomma

    :( Almost 5 Months!

    By hilarypf, Last action:
    • 3 replies
    • 1.5k views
    • researchmomma
    • researchmomma
  19. Guest flowermom6117
    Guest

    What Test Should I Ask For

    By Guest flowermom6117, Last action:
    • 5 replies
    • 1.3k views
    • Guest
    • Guest
  20. Bosmina323

    Cdsa Results Help (New Here With Some Background Info)

    By Bosmina323, Last action:
    • 4 replies
    • 2.1k views
    • Bosmina323
    • Bosmina323
  21. marie33
    ironcross

    Lost And Confused And Sad 1 2

    By marie33, Last action:
    • 43 replies
    • 7.5k views
    • ironcross
    • ironcross
  22. Katie1979

    What Do You Think? Yes Or No?

    By Katie1979, Last action:
    • 0 replies
    • 2.1k views
    • Katie1979
    • Katie1979
  23. CJC
    Adalaide

    Inconclusive Test Results For Celiac

    By CJC, Last action:
    • 12 replies
    • 5.8k views
    • Adalaide
    • Adalaide
  24. Oats

    Blood Test Result Statistics - Place A Vote, Make A Difference!

    By Oats, Last action:
    • 15 replies
    • 3.6k views
    • Oats
    • Oats
  25. birdie22
    Bubba's Mom

    Genetic Testing

    By birdie22, Last action:
    • 4 replies
    • 1.3k views
    • Bubba's Mom
    • Bubba's Mom
  26. tracy12
    samie

    Newly Self-Diagnosed With Major Potassium Problems

    By tracy12, Last action:
    • 2 replies
    • 1.1k views
    • samie
    • samie
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  • Posts

    • emily 1
      Black Pepper Reactions

      By emily 1 · Posted

      Very helpful. Oh yes, I am quite fastidious about not falling off the diet. It's just that the list of things I must add to the restrictions seems to grow.   
    • Barcino
      Chronic duodenitis and gastritis post diagnose

      By Barcino · Posted

      I know this post is old but was wondering if you ever resolved this. My son is in the same situation. Villi healed but gastritis / duodenitis remain and calprotectin elevated. Now testing for crohns which I am freaking out about. 
    • trents
      Black Pepper Reactions

      By trents · Posted

      I did a little research and one kind of aphthous ulcer (aka, canker sore) is the Herpetiform canker sore. It is well-known that celiac disease can cause a skin rash known as herpetiformis dermatitis. I can't help but wonder if there is a connection. Celiac disease is also listed in this article as a cause for canker sores: https://www.mayoclinic.org/diseases-conditions/canker-sore/symptoms-causes/syc-20370615 Are you observing a strict gluten free diet? You might also look into reducing iodine consumption as that is known to help with herpetiformis dermatitis. Perhaps it will help with your canker sores as well. 
    • knitty kitty
      Coping with celiac

      By knitty kitty · Posted

      Do you wear an M-95 mask left over from the pandemic when you handle flour? Do you eat out in restaurants? Do you take vitamins?  
    • knitty kitty
      Black Pepper Reactions

      By knitty kitty · Posted

      These articles are helpful.
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