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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,174 topics in this forum

  1. ldinap
    Roda
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  2. Kellietmac
    rosetapper23
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  5. reenag
    ravenwoodglass
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  6. marilyn
    mushroom
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  7. Loris
    Gluten Free Traveller
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  8. hales
    pricklypear1971
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  9. alexsami
    glutentheintolerant
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    mommida
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  12. meg6784
    beachbirdie
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  13. Nen
    Skylark
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  14. raesue
    love2travel
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  15. glutentheintolerant
    Twinklestars
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  16. Nen
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  17. bmama23
    pain*in*my*gut
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  18. suziq0805
    pain*in*my*gut
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  19. Crittle
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  20. heyteacher
    Twinklestars
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  21. nikiluna
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  22. Regameleca
    Monael
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  23. alexsami
    GlutenFreeManna
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  24. gcon45
    AVR1962
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  25. hercules25
    cassP
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  26. Flasaltwater
    pricklypear1971
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  27. nihao
    kareng
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  • Recent Activity

    1. - Levi replied to Marie70's topic in Parents, Friends and Loved Ones of Celiacs
      7

      My Adult daughter is blaming me for her "possible" Celiac disease.

    2. - Levi commented on Jefferson Adams's article in Gluten-Free Foods & Beverages
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      Top Brands of Gluten-Free Pasta

    3. - Lori Lavell replied to Eldene's topic in Food Intolerance & Leaky Gut
      14

      Oats gluten free?

    4. - Scott Adams replied to Eldene's topic in Food Intolerance & Leaky Gut
      14

      Oats gluten free?

    5. - trents replied to Eldene's topic in Food Intolerance & Leaky Gut
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      Oats gluten free?


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    • Levi
      When I was first Dg’d I researched like mad. One thing I remember from then, which may have changed with advancement in medical science, is that Coeliac is a first generation disease which means either you or your husband need be Coeliac for your daughter to have inherited it. Far as I know, and I’m not a scientist just a victim, the amount of gluten (wheat, rye, or barley) one consumes does not cause a person to contract Coeliac Disease. So if neither of you as her biological parents have Coeliac then your daughter cannot pass any blame should she contract this horrific disease.     It’s humbling, and sometimes I believe GOD allows such as these autoimmune diseases for those who need it most. 
    • Lori Lavell
      The body reacts to all grain proteins in all grains from my observation. Call it Gluten, Gliadin, which is what they test for commonly, however, I am Celiac and react with dermatitis herpetiformis to corn and the glutenous protein in it is called Zein. They only test for Gliadin. Testing needs to be updated in my opinion. It only take a small parts per million to continuously create systemic inflammation. This is not productive to healing and all grains contain some for gluten like substance. It's called Molecular Mimicry.
    • Scott Adams
      Thank you for sharing your perspective. It's true that many grains contain proteins that are technically classified as "glutens" (like zein in corn and orzenin in rice), but it's important to clarify that these proteins are not the same as the gluten found in wheat, barley, and rye, which contains gliadin and glutenin. These specific proteins are the ones that trigger an autoimmune response in people with celiac disease. For individuals with celiac disease, the primary concern is avoiding gluten from wheat, barley, and rye, as these are the grains scientifically proven to cause damage to the small intestine. While some people with celiac disease or non-celiac gluten sensitivity may also react to other grains, this is not universal and varies from person to person. For most people with celiac disease, grains like corn and rice are considered safe and are widely recommended as part of a gluten-free diet. That said, you raise an important point about systemic inflammation and individual tolerance. Some people may indeed have sensitivities to other grains or find that eliminating additional grains helps them feel better. However, it’s crucial to differentiate between celiac disease, which requires strict avoidance of wheat, barley, and rye, and other conditions or sensitivities that may involve broader dietary restrictions.
    • trents
      I disagree, Lori. Gluten is a particular protein, not a category of proteins. It is found in wheat, barley and rye. Other cereal grains have proteins that resemble gluten to one degree or another but are not gluten. Gluten is gluten. Avenin is avenin. But yes, it is true, that informally speaking, some have used the term "gluten" to refer to the proteins found in these other cereal grains. It's like the term "kleenex" has come to refer to all facial tissues.
    • Lori Lavell
      In fact ALL grains contain different forms of gluten that go by different names. Corn contains Zein and Rice contains Orzenin. We all need to realize that a very small amount of any of these grains can cause continued systemic inflammation which is not optimal for allowing the body to heal itself.  
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