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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.

19,241 topics in this forum

  1. englishbunny
    trents

    Negative biopsy and seeking doctor recs in Los Angeles

    By englishbunny, Last action:
    • 3 replies
    • 1k views
    • trents
    • trents
  2. Jack Common
    knitty kitty

    What should I do with these test results? 1 2

    By Jack Common, Last action:
    • 34 replies
    • 3.4k views
    • knitty kitty
    • knitty kitty
  3. Jack Common
    knitty kitty

    How many grams is there in one slice of wheat bread?

    By Jack Common, Last action:
    • 10 replies
    • 2.5k views
    • knitty kitty
    • knitty kitty
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  4. Pinkwells19
    trents

    Positive blood test

    By Pinkwells19, Last action:
    • 1 reply
    • 962 views
    • trents
    • trents
  5. MI-Hoosier
    trents

    Test uncertainty

    By MI-Hoosier, Last action:
    • 5 replies
    • 1.2k views
    • trents
    • trents
  6. Heather Hill
    cristiana

    Does this definitely suggest Coeliac Disease?

    By Heather Hill, Last action:
    • 4 replies
    • 1.2k views
    • cristiana
    • cristiana
  7. Chissers

    Could this be Celiac disease?

    By Chissers, Last action:
    • 4 replies
    • 998 views
    • Chissers
    • Chissers
  8. Kj44
    Wheatwacked

    Testing

    By Kj44, Last action:
    • 6 replies
    • 1.2k views
    • Wheatwacked
    • Wheatwacked
  9. KRipple
    Scott Adams

    Celiac or Addison's complications? Can someone share their experience?

    By KRipple, Last action:
    • 8 replies
    • 1.1k views
    • Scott Adams
    • Scott Adams
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  11. Bebee
    Scott Adams

    Testing for celiac

    By Bebee, Last action:
    • 3 replies
    • 898 views
    • Scott Adams
    • Scott Adams
  12. Ryangf
    Wheatwacked

    Do I really need to get a biopsy?

    By Ryangf, Last action:
    • 7 replies
    • 1.2k views
    • Wheatwacked
    • Wheatwacked
  13. Skg414228
    trents

    Does High DGP IGA Typically Mean Celiac?

    By Skg414228, Last action:
    • 21 replies
    • 1.4k views
    • trents
    • trents
  14. Dc91
    trents

    Celiac or not?

    By Dc91, Last action:
    • 9 replies
    • 1.3k views
    • trents
    • trents
  15. WildFlower1
    Beverage

    Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

    By WildFlower1, Last action:
    • 13 replies
    • 2.1k views
    • Beverage
    • Beverage
  16. Kiwifruit

    Years of testing - no real answers

    By Kiwifruit, Last action:
    • 12 replies
    • 1.3k views
    • Kiwifruit
    • Kiwifruit
  17. Nicola McGuire
    Scott Adams

    Testing

    By Nicola McGuire, Last action:
    • 1 reply
    • 781 views
    • Scott Adams
    • Scott Adams
  18. phosphene
    aattana

    Positive gliadin (deamidated) IgG, normal everything else?

    By phosphene, Last action:
    • 9 replies
    • 5.5k views
    • aattana
    • aattana
  19. AnnaNZ
    Jess270

    Bitters for digestion? 1 2

    By AnnaNZ, Last action:
    • 29 replies
    • 5.5k views
    • Jess270
    • Jess270
  20. Bane808
    Soleihey

    Long Story Of Neurological Symptoms And Lowish Ferritin- Could It Be Celiacs?

    By Bane808, Last action:
    • 21 replies
    • 12.7k views
    • Soleihey
    • Soleihey
  21. Jy11
    Scott Adams

    Conflicting results

    By Jy11, Last action:
    • 15 replies
    • 1.4k views
    • Scott Adams
    • Scott Adams
  22. growlinhard1

    Colonoscopy with large area of inflammation

    By growlinhard1, Last action:
    • 12 replies
    • 1.7k views
    • growlinhard1
    • growlinhard1
  23. Captain173
    Scott Adams

    Confused with test results

    By Captain173, Last action:
    • 5 replies
    • 1.1k views
    • Scott Adams
    • Scott Adams
  24. BIg Nodge
    Wheatwacked

    Opinions on my test results/symptoms

    By BIg Nodge, Last action:
    • 7 replies
    • 1.2k views
    • Wheatwacked
    • Wheatwacked
  25. cameo674

    Testing positive for antibodies, are there visible changes to the colon that could be seen without a biopsy?

    By cameo674, Last action:
    • 10 replies
    • 1.6k views
    • cameo674
    • cameo674
  26. Bebee

    Testing for celiac

    By Bebee, Last action:
    • 2 replies
    • 947 views
    • Bebee
    • Bebee
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  • Posts

    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      Thankfully those are normal. B12 was on the low end of the normal range when I first got diagnosed. When I last got it checked, it had come up a lot (455 last time checked).
    • Scott Adams
      mystery gluten?

      By Scott Adams · Posted

      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  I didn't notice any gluten ingredients in Kirkland Almond non-dairy beverage, however it does contain Locust Bean Gum. Some gums may cause IBS-type issues in some people with celiac disease or gluten sensitivity:    
    • trents
      Struggling to get into a good pattern

      By trents · Posted

      Have you had B12 levels checked?
    • Rejoicephd
      Struggling to get into a good pattern

      By Rejoicephd · Posted

      For the past few months, I've been taking several supplements (a multi-vitamin, an iron supplement, a vitamin C supplement, and a magnesium supplement), all of which state that they are gluten free on the label.  
    • trents
      mystery gluten?

      By trents · Posted

      Maltodextrin is typically made from corn.
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