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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- trents replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease11Increasing symptoms after going gluten free
Welcome to the forum, @Jo Woodard! The problem with oats is not always cross contamination with gluten from other grains. The main protein found in oats is "avenin" and it has a structure similar to the wheat/barley/rye protein "gluten". It is similar enough to cause a gluten-like reaction in some celiacs. About 10% of celiacs cannot tolerate oats. -
- trents replied to Skg414228's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms3
Does High DGP IGA Typically Mean Celiac?
You might find this interesting as it outlines the various antibody tests that can be ordered and rates them for their relative reliability: What symptoms do you experience and how long have you been experiencing them? Do you have any other blood work parameters that are out of range from say a CBC or CMP. For those with celiac disease, the immune system... -
- Ryangf replied to Ryangf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6Do I really need to get a biopsy?
@Scott Adams Thank you for your input- and I do think it’s best for me to just wait a little while before I do gluten challenge for a biopsy. Getting a dietitian is also a good idea. -
- Ryangf replied to Ryangf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Do I really need to get a biopsy?
@trents As much as I want to believe I have NCGS it seems unlikely that I do based on the fact that it caused other possible intolerances to other foods and I had clear signs of malnutrition exhibited by my rapid weight loss. Which may indicate stomach lining damage- as well as the anemia I already had has worsened. As far as the wheat flour particles that... -
- Ryangf replied to Ryangf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms6
Do I really need to get a biopsy?
@Wheatwacked Unfortunately I haven’t been able to intake a sufficient amount of iodine through means of salt because most big name brand iodine salts contain dextrose which is a corn derivative…I have only been able to use kosher salt.
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Welcome to the forum, @Jo Woodard! The problem with oats is not always cross contamination with gluten from other grains. The main protein found in oats is "avenin" and it has a structure similar to the wheat/barley/rye protein "gluten". It is similar enough to cause a gluten-like reaction in some celiacs. About 10% of celiacs cannot tolerate oats.
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You might find this interesting as it outlines the various antibody tests that can be ordered and rates them for their relative reliability: What symptoms do you experience and how long have you been experiencing them? Do you have any other blood work parameters that are out of range from say a CBC or CMP. For those with celiac disease, the immune system misinterprets gluten as an invader and sends attacking cells into the lining of the small bowel, causing inflammation. Over time, this inflammation wears down the "villi" that line the small bowel, millions and millions of tiny finger-like projections that constitute the nutrient absorbing organ of the intestinal track. This can greatly reduce the efficiency with which nutrients are absorbed and often leads to other nutrient deficiency-related medical problems such as anemia and osteopenia/osteoporosis, just to name a couple. Celiac disease is an autoimmune disorder and is often found in association with other autoimmune disorders such as Hashimoto's thyroid disease and diabetes. There are over 200 symptoms/medical problems that have been associated with celiac disease, many of them not fitting into the classic category of GI distress.
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@Scott Adams Thank you for your input- and I do think it’s best for me to just wait a little while before I do gluten challenge for a biopsy. Getting a dietitian is also a good idea.
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@trents As much as I want to believe I have NCGS it seems unlikely that I do based on the fact that it caused other possible intolerances to other foods and I had clear signs of malnutrition exhibited by my rapid weight loss. Which may indicate stomach lining damage- as well as the anemia I already had has worsened. As far as the wheat flour particles that is valid- I may start putting on a mask when i know we’re going to be handling wheat otherwise I don’t really need to wear one because the wheat and any type of flours are in a small corner of the room far away from the cooking a preparing space and we have a cleaning regimen.
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@Wheatwacked Unfortunately I haven’t been able to intake a sufficient amount of iodine through means of salt because most big name brand iodine salts contain dextrose which is a corn derivative…I have only been able to use kosher salt.
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