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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


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    • trents
      Although the gluten challenge guidelines suggest at least two weeks of at least 10g of gluten daily, I would go for 4 weeks to make sure - if you can tolerate it, that is. When you go in for the blood draw, make sure to ask your physician to order not only the tTG-IGA test but the total IGA test. The tTG-IGA test result cannot be trusted if you are IGA deficient. The total IGA test checks for IGA deficiency. Many physicians will order only the tTG-IGA. So, at the minimum, the doc should order the tTG-IGA and the total IGA. There are other celiac antibody tests that can also be ordered for a more comprehensive panel, especially in the case of IGA deficiency.  Here is an overview of celiac...
    • trents
      She carries one of the two primary genes that indicate the potential to develop celiac disease. About 40% of the general population carries one or both of these genes but only about 1% of the general population develops celiac disease. So, the gene test cannot be used to diagnose celiac disease but it can be used as a rule out measure. Having either one of the genes provides the potential for developing celiac disease with the HLADQ2, in my understanding, providing the strongest potential of the two while having both genes provides an even stronger potential. What meds did the physician put her on for the ulcers?
    • kim-d
      Thanks, @trents. That was what I was thinking of as well, but I'm a huge worrier and keep doubting if it was right thing to do so it seemed better to ask more experienced people. My diet won't be 100% gluten free unfortunately, but I'm thinking of using it as an opportunity to keep a food log and try to see what makes things worse. 
    • jjiillee
      Her Dr gave her meds for the ulcers and recommend the genetic blood test to rule out celiac. Got those results and the hla-dq2 is positive the hla-dq8 is negative. So I’m not sure what this all means. Waiting to hear from the Dr again. She has been eating gluten and did say she got bad stomach pain again the other day but it hasn’t happened in a few weeks so I’m not sure if it’s from gluten or the ulcers.
    • Soleihey
      I have been on supplementation for almost 11 months with no deficiencies showing up on blood work. So was just hoping to hear someone else’s story where it took longer to heal. 
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