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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Scott Adams replied to Marie70's topic in Parents, Friends and Loved Ones of Celiacs1My Adult daughter is blaming me for her "possible" Celiac disease.
It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent...- 1
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- Marie70 posted a topic in Parents, Friends and Loved Ones of Celiacs1My Adult daughter is blaming me for her "possible" Celiac disease.
Hello, My mid twenties daughter is blaming my husband and I for her celiac disease. She has not been diagnosed at all, but GOOGLE has informed her she has it. She is going to go get tested now, but my question is, did we? I was not the best cook while she was growing up and often made quick processed food for meals. She is blaming us for what she... -
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- RMJ replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2High blood test numbers - with scales. Any advice?
I’d say celiac is likely. Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen. Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. -
- TexasCeliacNewbie replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2High blood test numbers - with scales. Any advice?
I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation. I am only 42 so haven't had a bone density test yet. My calcium was normal, but my D was...
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By Scott Adams · Posted
It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten. -
Hello, My mid twenties daughter is blaming my husband and I for her celiac disease. She has not been diagnosed at all, but GOOGLE has informed her she has it. She is going to go get tested now, but my question is, did we? I was not the best cook while she was growing up and often made quick processed food for meals. She is blaming us for what she ate growing up and is angry that we didn't feed her better. I don't know how to react and all I could tell her was I was sorry. Her older brother has Crohn's disease and he was diagnosed as a teenager. She is also furious with us that we didn't change his diet either. I don't know why I didn't and I am having so much guilt I don't even know how to handle this situation. Both sides of our family have a history of IBS, Celiac and Crohn's disease. I guess I just wanted to hear from anyone out there that can either point blame at me (I can accept it) or tell me that the food she ate growing up didn't have an affect on her. I am thinking it most likely did. Thank you, Marie
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I’d say celiac is likely. Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen. Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer.
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By TexasCeliacNewbie · Posted
I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation. I am only 42 so haven't had a bone density test yet. My calcium was normal, but my D was a little low. They haven't checked for any other vitamin deficiencies yet. My blood test for an autoimmue disorder was quite high but my Thyroid was all normal. -
By TexasCeliacNewbie · Posted
Hi, I have been having a lot of back pain and gut issues for 8 weeks or so. I saw the GI on Monday and my results just came in from the lab. Some of these number are high and off the little chart from the lab. I am reading this correctly that I most likely have Celiac, right??? It would explain a lot of things for me. She does have me scheduled for a colonoscopy and endoscopy in 2 weeks to do the biopsy. I posted this prior, but forgot to put the range assuming they were all the same. Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10
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