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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- knitty kitty replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms25Can food allergies like milk and soy flatten villi?
Some people react to the Casein in dairy the same as to gluten, like me. I avoid dairy avidly because I get ataxia so bad. Some Celiac people produce tTg 6 antibodies in response to gluten or casein. tTg 2 antibodies are what blood tests for Celiac measure. tTg 6 antibodies are also found in Alzheimer's and Parkinson's diseases, contributing to ataxia... -
- knitty kitty replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
False blood test positive?
I agree that you were not eating sufficient gluten prior to your endoscopy. -
- Soleihey replied to Soleihey's topic in Related Issues & Disorders7Gluten Ataxia and Malabsorption
What supplement do you use and how much? -
- Lotte18 replied to Matt13's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms25Can food allergies like milk and soy flatten villi?
Hi Knitty Kitty, Thanks for sending all of these articles. Some of them are too complex for me to parse. That said, I had extensive blood tests done when the ataxia started. I was a little low on Vit. D. My doc thought I might be low on Vit. K. But no. K levels were completely normal as were all of my B Vits. levels. I take a D supplement but even... -
- knitty kitty replied to Soleihey's topic in Related Issues & Disorders7
Gluten Ataxia and Malabsorption
@Soleihey, Do get checked for thiamine deficiency. Blood tests for thiamine deficiency are not accurate. You can have "normal" levels in the blood, but still be deficient because thiamine stores inside cells are depleted. Thiamine deficiency can cause ataxia, tremor, muscle twitching, leg weakness, constipation, and slurred speech. I had these...
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By knitty kitty · Posted
Some people react to the Casein in dairy the same as to gluten, like me. I avoid dairy avidly because I get ataxia so bad. Some Celiac people produce tTg 6 antibodies in response to gluten or casein. tTg 2 antibodies are what blood tests for Celiac measure. tTg 6 antibodies are also found in Alzheimer's and Parkinson's diseases, contributing to ataxia. Have you been checked for tTg 6 antibodies? -
By knitty kitty · Posted
I agree that you were not eating sufficient gluten prior to your endoscopy. -
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Hi Knitty Kitty, Thanks for sending all of these articles. Some of them are too complex for me to parse. That said, I had extensive blood tests done when the ataxia started. I was a little low on Vit. D. My doc thought I might be low on Vit. K. But no. K levels were completely normal as were all of my B Vits. levels. I take a D supplement but even with that, if I have lactose, I start to feel my head get inflamed. It is what it is.
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By knitty kitty · Posted
@Soleihey, Do get checked for thiamine deficiency. Blood tests for thiamine deficiency are not accurate. You can have "normal" levels in the blood, but still be deficient because thiamine stores inside cells are depleted. Thiamine deficiency can cause ataxia, tremor, muscle twitching, leg weakness, constipation, and slurred speech. I had these symptoms and more that did not resolve with a one a day type vitamin. I needed high doses of Thiamine to correct the deficiency. Thiamine is safe and nontoxic even in high doses. Pregnancy can deplete thiamine stores. Interesting Reading: Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/
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