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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Dr. Elizabeth replied to jage's topic in Super Sensitive People6Trader Joe's strikes again
Got so sick from the English muffins as well. I have had no problem with any of the gluten-free products at Trader Joe’s since I was diagnosed with celiac a couple years ago so I was so surprised when I got so sick on the muffins. It had to be the gluten in the muffins because there was nothing else to blame it on.- bread
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- Soleihey replied to Soleihey's topic in Related Issues & Disorders9Gluten Ataxia and Malabsorption
@Scott Adams Recently got blood work back and TTG antibodies went from 168.8 to 16.7 and deaminated gliadin was 22 (was not measured the first time). Is this a good start for an 11 month time frame? Just having a hard time with why my symptoms seemed to be flaring up again when my blood work has improved. -
- dublin555 replied to ellieb13's topic in Dermatitis Herpetiformis3Eczema or dermatitis herpetiformis
I’ve been through something similar recently, and I know how frustrating it can be when nothing seems to work. Based on what you’ve described, it might be worth considering dermatitis herpetiformis, especially with the family history of celiac disease. Testing could give you some answers, and while online kits aren’t as reliable as a GP, they’re a good st... -
- trents replied to Jaylan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Symptoms & waiting on blood test results
Welcome to the forum, @Jaylan! Almost all of the symptoms and medical conditions you describe have been found to be associated with celiac disease. But they can also be caused by other things as well. There certainly is enough circumstantial evidence in your list of medical problems to warrant being tested for celiac disease. Ask your physician to order...
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By Dr. Elizabeth · Posted
Got so sick from the English muffins as well. I have had no problem with any of the gluten-free products at Trader Joe’s since I was diagnosed with celiac a couple years ago so I was so surprised when I got so sick on the muffins. It had to be the gluten in the muffins because there was nothing else to blame it on. -
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@Scott Adams Recently got blood work back and TTG antibodies went from 168.8 to 16.7 and deaminated gliadin was 22 (was not measured the first time). Is this a good start for an 11 month time frame? Just having a hard time with why my symptoms seemed to be flaring up again when my blood work has improved.
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I’ve been through something similar recently, and I know how frustrating it can be when nothing seems to work. Based on what you’ve described, it might be worth considering dermatitis herpetiformis, especially with the family history of celiac disease. Testing could give you some answers, and while online kits aren’t as reliable as a GP, they’re a good start if appointments are hard to get. I also found relief through medical cannabis for my eczema, at Releaf, a clinic in the UK that offers eczema medical cannabis treatment. They start with a low dose, adjust weekly, and track progress through online consultations.
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Welcome to the forum, @Jaylan! Almost all of the symptoms and medical conditions you describe have been found to be associated with celiac disease. But they can also be caused by other things as well. There certainly is enough circumstantial evidence in your list of medical problems to warrant being tested for celiac disease. Ask your physician to order a celiac panel consisting of, at the very minimum, these two blood antibody tests: total IGA and tTG-IGA. Please do not attempt to limit your gluten intake before the blood draw is taken or you will invalidate the testing. Incidentally, celiac disease is often misdiagnosed as IBS.
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