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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,149 topics in this forum

  1. CMCM
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  2. aknapp1978
    CMCM
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    Rachel--24
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  5. CMCM
    Nantzie
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    Rusla
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    tarnalberry
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  15. ebrbetty
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  18. VydorScope
    jenvan
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  19. Nantzie
    Guest
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  20. Moongirl
    Carriefaith
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  21. JasonJayhawk
    Rachel--24
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  22. VydorScope
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  23. lovetoeat
    jenvan
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  24. CMCM
    jerseyangel
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  25. lovetoeat
    tarnalberry
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  • Recent Activity

    1. - Sicilygirl replied to Sicilygirl's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      12

      Enegy level extremely low

    2. - trents replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    3. - SamClaire replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    4. - trents replied to SamClaire's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?

    5. - SamClaire posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      How long can symptoms take to appear?


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  • Posts

    • Sicilygirl
      Hello Scott, I did lose weight at the beginning of diagnosis and I know that it will take time to put on the weight I did lose. I think I have no appetite because this has been a roller coaster of emotions and a Big change on my body and its out of whack mentally and pysically. I think I am just depressed to be honest.  
    • trents
      It's easy to forget that it's not only the concentration of gluten in a given food item that's significant but also the total amount of gluten we consume over a period of time. This thing and that thing may meet the gluten-free requirement of not exceeding 20 ppm but if we eat enough of those things in a reasonably short amount of time it can have a cumulative effect because our bodies aren't given enough time to clear the gluten we have already consumed. Just curious. Did you know the fries were wheat breaded when you ate them?
    • SamClaire
      Hi! I try to steer clear of dairy and I cut out oats at the same time I did gluten products. It may be that something I had recently that was labeled as gluten-free contained oats. I am just so confused as to why I didn’t react when I know I ate wheat flour (breaded fries) but then reacted to something else 9 days later. Maybe you’re right and that it was the accumulation of things. 
    • trents
      Welcome to the forum, @SamClaire! I am reasonably sure that after 9 days any danger of a single gluten exposure reaction would have been long gone. If in fact the reaction you are speaking of is due to gluten, it is more likely a cumulative effect of small amounts of gluten having crept into your diet over time. Perhaps some food product you have been using that was once gluten free is no more. Companies can and do change their formulations over time so it may be wise to take inventory of what is in your cupboard and what your are purchasing and check closely the ingredient labels and the allergen statements. It is also possible that the reaction you mention is caused by something else that resembles a gluten reaction. Are you still consuming oats and dairy?
    • SamClaire
      Hi, I’m brand new to this website but I was diagnosed 14 years ago. I am just now getting over a particularly bad flare up that lasted a full 7 days. I’ve been trying to figure out what caused it and all I can think of is I know I accidentally ate gluten (specifically wheat flour) 9 days before my symptoms started. Could it have taken 9 days for my symptoms to start? I can’t think of any other culprit it could’ve been. Thank you!
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