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  12. Russ H
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  • Posts

    • Yaya
      I never had muscle twitching that I would relate to Celiac Disease (celiac disease).  However, I now have Long Covid and muscle twitching, burning, and other issues cropped up with that.  Predating all was restless leg syndrome (RLS).  Are you talking about RLS?  I've had that since '99.  It gets progressively worse.  
    • Scott Adams
      Hello @aperlo34, what types of supplements are you taking? Your symptoms could be related to vitamin/mineral deficiencies.   The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      I am in the same boat--my daughter is in a junior college and staying with us now, but will be going away this summer to a school far from home. We're doing the research now on their food options.
    • aperlo34
      How are you feeling now?  I’m 2.5 Months in and feeling similar. Muscles twitching, some cramps in my muscles etc. 
    • Cindy Neshe
      I purchased food items online seeing the gluten-free symbol. No where online did it say the products were cross contamination with Gluten in their facility. Has anyone else found this with products? We need better communication to make sure people who have sensitivity issues properly notified before purchasing the item. I have actually emailed companies and asked about their statement on the product that it is gluten-free but found out their facility is not dedicated gluten-free, which means Gluten can come in contact with the gluten-free food item. I had to call, nothing listed on the product. I know that a "Dedicated gluten-free Facility" will be listed but why are these manufacturers not listing cross contamination? The answer is probably they don't want to be accountable. 
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