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Recent Activity
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- Bebygirl01 posted a topic in Related Issues & Disorders0How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?
On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those... -
- Scott Adams replied to Dawn Meyers's topic in Related Issues & Disorders21Vaccines
I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than ... -
- knitty kitty replied to Dawn Meyers's topic in Related Issues & Disorders21Vaccines
If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1. Thiamine is needed in the immune response and production of antibodies. Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease. Thiamine can be destroyed by sulfide...- 1
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- knitty kitty replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease8
Increasing symptoms after going gluten free
@Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products. We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life. Sudden weight gain (or weight... -
- knitty kitty replied to WildFlower1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms11
Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!
Welcome to the forum, @WildFlower1, Here's an article that explains about the updated gluten challenge guidelines. Be sure to read the comments below the article. Have you been checked for nutritional deficiencies? Low iron can affect antibody production, causing false negatives on antibody testing. Do you currently struggle with low iron? ...
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By Bebygirl01 · Posted
On my Celiac journey and discovered I was also reacting to other types of gluten. The FDA in it's finite wisdom only classifies 'wheat, barley and rye' as the gluten's to be considered when a company tests for and stamps their products as gluten free. I am curious as to how many of you are aware of the other types of glutens? And another question to those on a 'traditional' gluten free diet , who are also still sick and struggling, are you also reacting to these other types of gluten as listed below? NOTE: The new movement if you want to call it that, is now called 'grain free' and that is the true definition of gluten free. I no longer suffer with ataxia, confusion, anxiety, depression, OCD, Insomnia, ADD, acid reflux, dermatitis herpetiformis, migraines, headaches, and weight issues all due to going 'grain free'. I hope to reach as many of you out there that are still struggling and unaware of what might be setting you off such as my most recent glutening was from a vegan supplement that contained 'magnesium sterate' and 'glucose syrup' both of which are from Zien (zane) gluten at 55%. I was covered in sores that were bleeding, I was seeing squigly lines when I was trying to drive, had acid reflux, insomnia, and nightmares all from the gluten in Corn. Here are the other types of glutens that Celiacs and Gluten Intolerant people also react to: Wheat -Alpha Gliadin Gluten- 69% Rye - Secalinin gluten-30-50% Oats-Avenin gluten -16% Barley-Hordein Gluten -46-52% Millet-Panicin Gluten-40% Corn-Zien Gluten -55% Rice-Orzenin Gluten-5% Sorghum-Kafirin gluten-52% and Teff-Penniseiten Gluten 11%. -
By Scott Adams · Posted
I just want to mention again that IF thimerosal is used in a flu vaccine the amount of ethylmercury in a single vaccine dose would be extremely small, typically around 25 micrograms (µg) or less. For context, this is much lower than the levels of methylmercury found in some seafood. Ethylmercury is metabolized and excreted from the body much faster than methylmercury. Its half-life in the blood is about 7 days, compared to methylmercury, which can persist for months. The dose of ethylmercury in vaccines is far below the threshold known to cause toxicity so would not require chelation. -
By knitty kitty · Posted
If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1. Thiamine is needed in the immune response and production of antibodies. Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease. Thiamine can be destroyed by sulfide preservatives in vaccines, which can result in the body's poor response to vaccines. Thiamine also chelates metals which allows those metals to be removed in the feces. Chelation removes thiamine from the body, resulting in a state of thiamine deficiency. Sugar alcohols need to be processed through the liver using thiamine. Again, if you're low in thiamine as many Celiac are because of the Malabsorption of celiac disease, vaccines can be a tipping point, resulting in a thiamine deficient state. High doses of Thiamine required to correct thiamine deficiency states are safe and nontoxic. Thiamine has no toxicity level. Thiamine and the other B vitamins need to be taken together because they interact together to sustain health. References: https://pubmed.ncbi.nlm.nih.gov/25542071/ https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ -
By knitty kitty · Posted
@Pasballard, Keep in mind those gluten free processed snacks are not required to have vitamins and minerals added to them to replace vitamins lost in processing like gluten containing products. We need the eight essential B vitamins to turn those carbs into energy to fuel our bodies and make enzymes that sustain life. Sudden weight gain (or weight loss) can be symptomatic of Thiamine Vitamin B1 deficiency. Thiamine is the B vitamin with the shortest storage time, and so thiamine deficiency shows up first with vague symptoms like weight gain or loss, fatigue, not sleeping well, achy or cramping muscles, digestive issues and headaches. Taking vitamin and mineral supplements helps boost your body's ability to absorb these nutrients which keeps our bodies healthy. B Complex vitamins and Vitamin D (which regulates inflammation) are usually low in people with Celiac disease. Talk to your doctor and nutritionist about supplementing. -
By knitty kitty · Posted
Welcome to the forum, @WildFlower1, Here's an article that explains about the updated gluten challenge guidelines. Be sure to read the comments below the article. Have you been checked for nutritional deficiencies? Low iron can affect antibody production, causing false negatives on antibody testing. Do you currently struggle with low iron? Low Vitamin D can cause amenorrhea, cessation of menstrual periods. Correcting nutritional deficiencies is a big part of Celiac disease. We don't absorb well the eight essential B vitamins and other vitamins and minerals like calcium, resulting in osteopenia, hair loss, infertility, and neurological symptoms. Unfortunately, doctors are not given much training in nutritional deficiencies and don't recognize the connection with the malabsorption of Celiac disease. We get very frustrated here with doctors ordering us to put a harmful substance in our bodies in order for them to say "that makes you sick". Duh, we know that already. Do try to increase your consumption of gluten for at least two weeks before retesting. Eat the chewy kinds of breads. Cookies and cakes don't have as much gluten in them as those chewy artisan breads and thick pizza crusts. I admire your tenacity at continuing the gluten challenge. Do keep us posted on your progress. We'll continue to support you on your journey to diagnosis and recovery.
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