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- RMJ replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2High blood test numbers - with scales. Any advice?
I’d say celiac is likely. Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen. Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. -
- TexasCeliacNewbie replied to TexasCeliacNewbie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2High blood test numbers - with scales. Any advice?
I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation. I am only 42 so haven't had a bone density test yet. My calcium was normal, but my D was... -
- TexasCeliacNewbie posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2
High blood test numbers - with scales. Any advice?
Hi, I have been having a lot of back pain and gut issues for 8 weeks or so. I saw the GI on Monday and my results just came in from the lab. Some of these number are high and off the little chart from the lab. I am reading this correctly that I most likely have Celiac, right??? It would explain a lot of things for me. She does have me scheduled for a... -
- trents replied to growlinhard1's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Colonoscopy with large area of inflammation
Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant...- 1
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Hello, My mid twenties daughter is blaming my husband and I for her celiac disease. She has not been diagnosed at all, but GOOGLE has informed her she has it. She is going to go get tested now, but my question is, did we? I was not the best cook while she was growing up and often made quick processed food for meals. She is blaming us for what she ate growing up and is angry that we didn't feed her better. I don't know how to react and all I could tell her was I was sorry. Her older brother has Crohn's disease and he was diagnosed as a teenager. She is also furious with us that we didn't change his diet either. I don't know why I didn't and I am having so much guilt I don't even know how to handle this situation. Both sides of our family have a history of IBS, Celiac and Crohn's disease. I guess I just wanted to hear from anyone out there that can either point blame at me (I can accept it) or tell me that the food she ate growing up didn't have an affect on her. I am thinking it most likely did. Thank you, Marie
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I’d say celiac is likely. Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen. Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer.
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By TexasCeliacNewbie · Posted
I do also have the bloating, gas, constipation, hair loss, an auto-splenectomy that no one can see any reason for and some elevated liver enzymes that don't seem to have a cause, I also have joint pain and some spinal compression fractures that have no explanation. I am only 42 so haven't had a bone density test yet. My calcium was normal, but my D was a little low. They haven't checked for any other vitamin deficiencies yet. My blood test for an autoimmue disorder was quite high but my Thyroid was all normal. -
By TexasCeliacNewbie · Posted
Hi, I have been having a lot of back pain and gut issues for 8 weeks or so. I saw the GI on Monday and my results just came in from the lab. Some of these number are high and off the little chart from the lab. I am reading this correctly that I most likely have Celiac, right??? It would explain a lot of things for me. She does have me scheduled for a colonoscopy and endoscopy in 2 weeks to do the biopsy. I posted this prior, but forgot to put the range assuming they were all the same. Someone advised me to repost with the ranges for some insight in the meantime. Immunoglobulin A, Qn, Serum 140 (normal) - Normal is 87-352 Deamidated Gliadin Abs, IgA 256 (High) - Moderate to strong positive at or above 30 Deamidated Gliadin Abs, IgG 65 (High) - Moderate to strong positive at or above 30 t-Transglutaminase (tTG) IgA 31 (High) - Moderate to strong positive above 10 t-Transglutaminase (tTG) IgG 10 (High) - Positive is at or above 10 -
Usually, the blood testing is done first and the endoscopy/biopsy follows for confirmation if there are positive antibody test scores. Historically, the endoscopy with biopsy has been considered to be the gold standard for diagnosing celiac disease. If the tTG-IGA scores are very high (5x-10x normal), some doctors will forego the endoscpoy/biopsy and grant a celiac disease diagnosis without it. So, if you are starting with the endoscopy/biopsy that may be all you need to arrive at a diagnosis. Another possibility would be for the GI doc to do a blood draw for antibody testing on the same day you come in for the endoscopy/biopsy.
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