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Recent Activity
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- PlanetJanet replied to PlanetJanet's topic in Gluten-Free Foods, Products, Shopping & Medications2Modified Food Starch
They say maltodextrin is gluten-free, even if it's made from wheat, because the gluten is processed away. It makes no difference to my body. I still get uncontrollable flatulence and leakage. Happens every time, even if I refuse to believe it will happen. Once I was taking Gas-X chewables to hang around with people I was visiting and staying with, to... -
- PlanetJanet replied to PlanetJanet's topic in Gluten-Free Foods, Products, Shopping & Medications2
Modified Food Starch
Titanium dioxide is that chemical in vitamins, toothpaste, and processed white foods that is the whitener for the pill coloring. It is inflammatory for me. I have an intestinal reaction to it, every time. https://www.webmd.com/diet/titanium-dioxide-in-food https://pmc.ncbi.nlm.nih.gov/articles/PMC11295244/#:~:text=EFSA concluded that titanium... -
- trents replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8Test says no, but body says Yes?
"This gluten problem is, apparently, mostly a female issue, as well, 2 to 1 female. The medical establishment does not put an equal amount of resources into female medicine as it does to men's medicine, no matter how far we've come." PlanetJanet, while it is true that more women than men are diagnosed with celiac disease, it may not be true that it... -
- PlanetJanet replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Test says no, but body says Yes?
I will never have a formal diagnosis. -
- PlanetJanet replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms8
Test says no, but body says Yes?
Hi, Travel Celiac, After several years of gastro problems, reading Wheat Belly, and some other books, tracking my food, and finally swearing off wheat, barley, and rye, (for years), I went to a gastroenterologist. I insisted on being tested for celiac disease, including genetic testing, and the answer he gave was an email: "You do not have celiac disease...
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By PlanetJanet · Posted
They say maltodextrin is gluten-free, even if it's made from wheat, because the gluten is processed away. It makes no difference to my body. I still get uncontrollable flatulence and leakage. Happens every time, even if I refuse to believe it will happen. Once I was taking Gas-X chewables to hang around with people I was visiting and staying with, to make sure I would feel safer and more comfortable. WRONG. I forgot to read the label. I didn't realize it till after I left and went home--MALTODEXTRIN. I was miserable the whole time. The second gastroenterologist I saw made the tentative diagnosis of microscopic colitis. Usually occurs in women over 60, I was 59, had been in a crash, (2020) was taking alot of NSAIDS, muscle relaxants. Had constant diarrhea, gas, leaking. Unbearable, and I didn't know it was NSAIDS. I was scheduled for two-way endoscopy, mouth to butt, but they wanted $2,000 up front. Finally, had a colonoscopy in 2022, 10 biopsies, didn't find a thing! MC can go into remission, which I was, of course, desperate to do. No more NSAIDS, tried to cut down on all the other pain killers, everything, chemicals that I knew triggered me. So, no, they didn't find anything. So sad that we have to make ourselves sicker and more injured to get a proper diagnosis! Microscopic colitis is being seen concurrently with gluten problems. MC can be triggered by NSAIDS, SSRI's, all kinds of things. https://my.clevelandclinic.org/health/diseases/17227-microscopic-colitis Some links for maltodextrin health effects: https://pmc.ncbi.nlm.nih.gov/articles/PMC6409436/#:~:text=Altogether%2C these findings show that,the development of intestinal inflammation. https://www.mdedge.com/internalmedicine/article/193956/gastroenterology/maltodextrin-may-increase-colitis-risk -
By PlanetJanet · Posted
Titanium dioxide is that chemical in vitamins, toothpaste, and processed white foods that is the whitener for the pill coloring. It is inflammatory for me. I have an intestinal reaction to it, every time. https://www.webmd.com/diet/titanium-dioxide-in-food https://pmc.ncbi.nlm.nih.gov/articles/PMC11295244/#:~:text=EFSA concluded that titanium dioxide,uncertainties in recent toxicological studies. -
"This gluten problem is, apparently, mostly a female issue, as well, 2 to 1 female. The medical establishment does not put an equal amount of resources into female medicine as it does to men's medicine, no matter how far we've come." PlanetJanet, while it is true that more women than men are diagnosed with celiac disease, it may not be true that it afflicts twice as many women as men. The discrepancy could also be due to a significant difference in the percentage of men who seek medical attention for symptoms signaling possible celiac disease vs. women who do. Men tend to ignore health problem symptoms and put off seeking medical attention more than women do I believe. Can you site sources in support of your assertion that the medical establishment does not put equal amount of resources into female medicine as it does into men's medicine?
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By PlanetJanet · Posted
Hi, Travel Celiac, After several years of gastro problems, reading Wheat Belly, and some other books, tracking my food, and finally swearing off wheat, barley, and rye, (for years), I went to a gastroenterologist. I insisted on being tested for celiac disease, including genetic testing, and the answer he gave was an email: "You do not have celiac disease." I was very confused and wanted to understand more. I insisted on getting the full report from him from the lab. I read and researched and read and researched everything I could find. It can't be diagnosed from the blood test if you are not eating gluten, which I wasn't. I am not willing to eat gluten for a month to get another blood test. The risks are too disgusting to deal with. People can test positive and not be having any problems at all. The genetics are not black or white either. Apparently, there is a gene "dose effect." You could have a strong genetic profile, or a lot of the genes, or just one allele on one gene. DLQ2 or DLQ8, or something. Whether celiac disease or "gluten sensitivity," or "Non-Celiac Gluten Sensitivity," presents itself, apparently, can depend on your gene dose, your age, your gender, or having a stressful life, maybe. I raised my daughter by myself and am still battling poverty, political worry, family and childhood abuse, (no drug or alcohol problems, thank goodness). This gluten problem is, apparently, mostly a female issue, as well, 2 to 1 female. The medical establishment does not put an equal amount of resources into female medicine as it does to men's medicine, no matter how far we've come. Anyway, I never had problems till the last few years (I am 64). BTW I threw away my lab report after many years of filing it away. I had the one allele on one gene, DLQ2 or 8, IDK. Too frustrated with providers giving me that blank stare when I try to talk to them about it. They don't believe me!
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