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Related Issues & Disorders

Discussions concerning the various associated health problems, including but not limited to pregnancy, sleep & weight issues.


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  • Posts

    • Scott Adams
      You can buy gluten-free cheese sauce powder on Amazon, or you can buy gluten-free macaroni and cheese, which include a cheese sauce packet. Many alfredo sauces in the jar are also gluten-free.
    • Scott Adams
      You may want to look at this thread before you proceed:  Also, I am not sure why you would "negotiate" a 7-10 gluten challenge, when the science indicates that such a length of time is likely not long enough.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      If you get tested for celiac disease be sure that you are eating lots of gluten daily in the 6-8 weeks before the test, otherwise you could get false positive results. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:   If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • trents
      Jula, terminology can be confusing and the terms "gluten sensitive" and "gluten intolerant" are used by different people to mean different things. That's why I stick to using "celiac disease" and "NCGS" (Non Celiac Gluten Sensitivity) because those are the technical terms used by the medical community and it eliminates the confusion. As you point out, regardless of whether you have celiac disease or NCGS, the antidote is the same - total abstinence from gluten. There is this misconception out there that NCGS is harmless, just uncomfortable and inconvenient so you don't have to be so careful as you do with celiac disease. I'm not so sure I buy into that. Especially since some experts in the field of gluten disorders believe that NCGS can transition into celiac disease. And even if it doesn't, there is at least anecdotal evidence that some with NCGS experience harm to non enteric body systems from continuing to consume gluten. We actually know more about how celiac disease engages the immune system than we do about  how NCGS engages the immune system. These two may not be as neatly separated as we historically have been used to thinking. Yes, it is true that gluten disorders can affect various organ systems and not just the small bowel but that may also be true of NCGS and not just celiac disease. I just think there are gray areas here we don't completely understand yet. The fact that you get this rash when you experience gluten contamination strikes me a being very telltale. Can you describe the rash? dermatitis herpetiformis has a characteristic appearance to it. The rash pimples have tiny pustules. Celiac disease is the only known cause for dermatitis herpetiformis. So, if you have dermatitis herpetiformis, you have celiac disease. Many dermatologists do not know how to properly biopsy dermatitis herpetiformis. So, if you pursue that route, do some research and find one who is experienced in this. And the other  problem typically is being able to arrange an appointment when you are having an outbreak. I suppose you could make an appointment and then plan on eating gluten just previous. I don't know where you live and what your medical system is like but as a U.S. based person I think of my doctors as working for me, not the other way around. I don't acquiesce to them just because they have a medical degree. I'm capable of doing my own research and making decisions that make sense to me. I'm the one who has to live with them. Of course, I certainly value the physician's input and will factor that into my decision making.
    • Jula
      Thanks, trents, for both the welcome and the perspective. That is exactly how I'm feeling at this point. The main reason I was considering this particular confirmation is because 2 primary care physicians, one an internist, had said this should be done because they could not be sure based on the information I have that it is celiac and not gluten intolerance. When I asked why that mattered, either way I would have to remain gluten free, the internist especially insisted that she would have to watch for a different set of repercussions on other organs. I could find no proof of this but the questions she raised made me think I should have a definitive diagnosis. But now knowing that it's more than a meal's worth of contamination needed, I don't think I can do it, although  the occasional contamination from eating at a friend's place or restaurant may still happen and if it does and I end up with the rash again, I could get that biopsied and have the same results, it seems. Thanks, again.
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