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Recent Activity
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- Barcino replied to Barcino's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Antibodies went up
FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post. -
- Scott Adams replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9Daughter waiting for appointment
Yes, she should be eating lots of gluten daily...4 slices of wheat bread would be ideal for the screenings. -
- Barcino posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1
Antibodies went up
Hello, I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis. My son went from >250 July 2023 to 33 Nov 2023 to 15.7 July 2024. With <15 being negative. He is almost there. My daughter went >250 July 2023 to... -
- jjiillee replied to jjiillee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms9Daughter waiting for appointment
She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy. They told her to keep Eating gluten. She has been eating is again for the last couple w...- 1
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- BoiseNic replied to BoiseNic's topic in Dermatitis Herpetiformis7Skinesa
Agreed. Dairy is just as bad as gluten for me.- 1
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0December 11, 2024 12:00 AM
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Posts
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FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post.
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By Scott Adams · Posted
Yes, she should be eating lots of gluten daily...4 slices of wheat bread would be ideal for the screenings. -
Hello, I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis. My son went from >250 July 2023 to 33 Nov 2023 to 15.7 July 2024. With <15 being negative. He is almost there. My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.7 July 2024 to now back up to 35.6. We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer. Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free. My son is away at school so trying to figure out what she does and eats that he doesnt. Chickpeas (canned), dairy (he doesnt eat much dairy due to acne) and of course her medications. Thank you for any input you may have.
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She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy. They told her to keep Eating gluten. She has been eating is again for the last couple weeks.
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