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Dermatitis Herpetiformis

Discussions concerning the skin condition associated with celiac disease.


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  • Posts

    • Scott Adams
      Welcome to the forum, your symptoms are certainly consistent with possible celiac disease. Were you eating lots of gluten daily in the 6-8 weeks before the test? If not it could lead to false negative results. When you post your results please also include the reference ranges, as each lab uses their own. Good luck!
    • Celiacandme
      Keep us posted on your results. I hope you don't have to wait too long. Are you planning to have your son tested? Do you feel your father might get tested? Wishing you all better health.🍀
    • Scott Adams
      Were you eating lots of gluten in the 6-8 weeks before your blood test? If not, you can end up with false negative results. Feel free to share your blood test results--were your antibody levels elevated at all?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. If your biopsy ends up negative you still may want to go gluten-free for a few months to see if your symptoms go away. Also, be sure to eat tons of gluten daily in the 2 weeks leading up to your endoscopy, otherwise you could get false negative results.       
    • Scott Adams
      It's difficult to say exactly why, but it is worth discussing this with your doctor, as it can by a symptom of other things--especially if you're also losing weight.
    • ChrisSeth
      Hi I finally visited with the Dr today and she ordered labs to be done. Not just for celiac disease but about 7 blood tests in total including iron levels. I’m 30 years old.  My symptoms are  -Chronic diarrhea. In the last month and I half I had it multiple times a day, everyday. Pretty often occurrences  before I really started paying attention.  -frequent headaches  -fatigue -had my appendix removed 1 year ago due to appendicitis (not sure if this is related) -frequent stomach rumbling and gas -sleep disturbances-waking up multiple times a night (3-5 times a night) -severe restless leg syndrome  -generally just don’t feel well on a daily basis -hands and feet get cold very easily tingly feet -anxiety/depression/mood swings/irritability . I take medication for bipolar disorder and anxiety but still have anxiety  -sometimes get acid reflux. And sometimes it’s really bad. Like wake up choking on vomit thinking I’m gonna die bad.  My son is 6 and has excema, is anemic, is on 2nd percentile for growth, gets constipated, and is at risk of having seizures… My Dad was diagnosed with ulcerative colitis as a kid 50 years ago, and has a non alcoholic fatty liver, is anemic, and is fatigued.    I’ll post my results as soon as I get them. To be honest I’m hoping it is celiac disease as it could explain so many things I’m dealing with. 
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