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Dermatitis Herpetiformis

Discussions concerning the skin condition associated with celiac disease.


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  • Posts

    • Jenn D
      My son was diagnosed with Celiac Disease is April 2023. His ttg antibody was over 100 at the time of diagnosis. Now it is at 3 (which is considered negative), but his endomysium antibody iga is still coming up positive. There is no specific number just positive or negative so I'm not sure if he's getting better or not. I'm getting nervous that something else is going on and I was just looking for some advice or an understanding what this "postive" actually means. He gets tested every 6 months. Thank you so much for any responses😊 Attached is a picture of his bloodwork from August 2024
    • trents
      @JenFur, if this is microwave popcorn you are using, check for added ingredients that could be causing a reaction such as flavorings which might be hidden sources of gluten.
    • trents
      Welcome to the forum, @JenFur! You must be relatively new to the celiac journey. I wish it were as simple as just having to cut out gluten and all our gut issues magically disappear. It is very common for those with celiac disease to develop intolerance/sensitivity to other foods. Often it is because the protein structure of some other foods resembles that of gluten. Sometimes it is because damage the damage done to the gut lining by celiac disease wipes out cells that produce enzymes needed to break down those foods. Sometimes it is because the "leaky gut syndrome" associated with celiac disease causes the immune system to incorrectly identify other food proteins as threats or invaders. The two most common non-gluten foods that cause trouble for a lot of celiacs are dairy and oats. But soy, eggs and corn are also on that list. Sometimes these non-gluten food intolerances disappear with time and the healing of the villous lining of the small bowel.
    • JenFur
      I love popcorn but it doesn't love me.  Right now my gut hurts and I am bloated and passing gas.  Am I just super sensitive. I thought popcorn was gluten free 🤔 
    • trents
      Welcome to the forum, @marinke! "Type 1a diabetes (DM1) is associated with an increased risk of celiac disease (celiac disease) (1)." from: https://diabetesjournals.org/care/article/35/10/2083/38503/IgA-Anti-transglutaminase-Autoantibodies-at-Type-1 "The prevalence of celiac disease (celiac disease) in children with type 1 diabetes (T1D) is 5.1%, and it is often asymptomatic (1)." from: https://diabetesjournals.org/care/article/48/2/e13/157637/Diagnostic-Outcomes-of-Elevated-Transglutaminase So, this is 5x the rate found in the general population.
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