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Dermatitis Herpetiformis

Discussions concerning the skin condition associated with celiac disease.


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    • Jordan Carlson
      Hello everyone, I am wondering if anyone has experienced the same thing as me. Literally ever since I went 100% gluten free and started eating the cleanest I have ever ate in my life, I get sick WAY more often than I ever did prior to my diagnosis and being gluten free. I almost dont rememebr ever getting sick before. Now the last 3 ish years I have been sick more than I ever have been in my life. Could it be my immune system was so tired/fatigued prior to diagnosis that it just wouldnt turn on anymore? And now that my stress and inflammation is down its functioning stronger? Really interested to see if anyone has any insight on this. Thank you!
    • trents
      ome value? Is that a typo? I don't see that on any of the test results you post and I've never heard of that one.
    • Scott Adams
      Thanks for the update! It’s great that your GI is being thorough with the follow-up testing—hopefully the endoscopy will give you clearer answers. The EPI diagnosis is interesting; I’ve read that celiac can sometimes lead to pancreatic issues like EPI due to long-term malabsorption or autoimmune overlap. Have they mentioned if your EPI might improve with a gluten-free diet if celiac is confirmed? Wishing you smooth sailing with the endoscopy tomorrow—let us know how it goes.
    • Brown42186
      Hi again! I just wanted to update here that the GI redid my bloodwork and the ome value is still high so I'm having an endoscopy tomorrow. I also got diagnosed with EPI which seems to possibly be linked to celiac according to Google.
    • Liquid lunch
      Reishi and cordyceps are immune modulators, they stop you reacting so much/producing antibodies to lectins. Uptake is better when taken as a tincture, you can buy it pre made as a tincture, usually vodka based, or make your own which is much cheaper. You can find instructions online, basically powdered mushrooms soaked in strong alcohol for a month, shaking regularly. Then the strained mushrooms are heated gently in water for 8 hours, strained again and the water then combined with the first alcohol extract. Some of the properties are water soluble, others require alcohol for extraction. It’s also prescribed for fatigue which is a side effect I’m happy to put up with.
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