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Dermatitis Herpetiformis
Discussions concerning the skin condition associated with celiac disease.
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Recent Activity
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- Scott Adams commented on Jefferson Adams's article in Gluten-Free Foods & Beverages20Top Brands of Gluten-Free Mayonnaise
In general if you see "gluten-free" on a label in the USA, Canada, Europe, Australia, etc., it does mean that the food is safe for those with celiac disease, and it does NOT mean that there is 19ppm gluten in it, as some people might lead you to believe. Whenever a company detects gluten in the 5-19ppm (most tests can't accurately go below this level...- brands
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- RMJ replied to Jenn D's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Bloodwork still postive after 18 months
How frustrating! The Endomysium antibody result is usually given as a titer, 1:5, or 1:10, or 1:20. This indicates how far the serum can be diluted and still give a positive result. It could be going down but the way they show the results you can’t tell. If you click on the “view trends” button on an electronic version of the results does it show any a... -
- Scott Adams commented on Scott Adams's article in Latest Research10
Impact of a Gluten-Free Diet on Gut Function and Microbiome in Celiac Disease (+Video)
It is a facial mask? It says "Most people don’t know there are cures that don’t involve running to a doctor or going completely gluten free!" so clearly this is totally false information and they are trying to take your money.- bifidobacteria
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- misslemon posted a topic in Coping with Celiac Disease0Catholic Mass for Celiacs
Hi, I'm hoping to get some advice on how to handle Mass as a new Catholic. I'm looking to take the Mass for the first time in March. I've been told that the church has a "low gluten" option that is 0.01% gluten. Is this safe, especially to do every week? I also read that taking the wine instead could be more of a problem if it gets contaminated with... -
- Jenn D posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Bloodwork still postive after 18 months
My son was diagnosed with Celiac Disease is April 2023. His ttg antibody was over 100 at the time of diagnosis. Now it is at 3 (which is considered negative), but his endomysium antibody iga is still coming up positive. There is no specific number just positive or negative so I'm not sure if he's getting better or not. I'm getting nervous that something else...
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By Scott Adams · Posted
This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
By Scott Adams · Posted
Here is a category of study summaries on the relationship of Type 1 diabetes and celiac disease: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/diabetes-and-celiac-disease/ This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. -
How frustrating! The Endomysium antibody result is usually given as a titer, 1:5, or 1:10, or 1:20. This indicates how far the serum can be diluted and still give a positive result. It could be going down but the way they show the results you can’t tell. If you click on the “view trends” button on an electronic version of the results does it show any additional information?
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Hi, I'm hoping to get some advice on how to handle Mass as a new Catholic. I'm looking to take the Mass for the first time in March. I've been told that the church has a "low gluten" option that is 0.01% gluten. Is this safe, especially to do every week? I also read that taking the wine instead could be more of a problem if it gets contaminated with regular crumbs. I found this information online: "The Benedictine Sisters of Perpetual Adoration in Clyde, Missouri, have developed a Communion host that is extremely low in gluten. The host is made from gelatinized wheat starch. The Sisters report the hosts test to a level of 0.01% gluten. At that level, the lowest that could be tested, no gluten was detected. This means that there is less than 0.01% gluten in one of these hosts. The Secretariat for the Liturgy of the United States Conference of Catholic Bishops has stated that these hosts meet the requirements of the Code of Canon Law (924 §2) and may be validly used at the celebration of the Eucharist with permission of the person's pastor. The Catholic with celiac disease can now fully participate in Holy Communion with the whole parish family. Catholic celiacs may choose to receive consecrated wine at a regular communion station if their parish offers communion under both species. There is greater risk for contamination using this option. The fraction rite may allow small, yet dangerous crumbs to be in the cup." Thank you for any guidance!
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My son was diagnosed with Celiac Disease is April 2023. His ttg antibody was over 100 at the time of diagnosis. Now it is at 3 (which is considered negative), but his endomysium antibody iga is still coming up positive. There is no specific number just positive or negative so I'm not sure if he's getting better or not. I'm getting nervous that something else is going on and I was just looking for some advice or an understanding what this "postive" actually means. He gets tested every 6 months. Thank you so much for any responses😊 Attached is a picture of his bloodwork from August 2024
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