-
Welcome to Celiac.com!
You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.
-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Gluten-Free Restaurants
Looking for a safe place to eat? Know of a great GF restaurant? Share it!
4,397 topics in this forum
-
- 1 reply
- 405 views
-
- 1 reply
- 765 views
-
- 1 reply
- 590 views
-
- 8 replies
- 2.4k views
-
- 1 reply
- 1.7k views
-
- 11 replies
- 4.6k views
-
- 7 replies
- 3.1k views
-
- 7 replies
- 2.3k views
-
- 4 replies
- 1.4k views
-
Celiac.com Sponsor (A10):
Celiac.com Sponsor (A10):
-
- 3 replies
- 554 views
-
- 5 replies
- 2k views
-
- 10 replies
- 5.4k views
-
- 7 replies
- 2.6k views
-
- 2 replies
- 2.1k views
-
- 2 replies
- 2.8k views
-
- 0 replies
- 3.6k views
-
- 4 replies
- 2.3k views
-
- 1 reply
- 2k views
-
- 5 replies
- 1.8k views
-
- 6 replies
- 2.3k views
-
- 9 replies
- 3k views
-
- 16 replies
- 3.7k views
-
- 1 reply
- 2k views
-
- 4 replies
- 2.8k views
-
- 2 replies
- 1.8k views
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8-M):
-
Get Celiac.com Updates:Support Celiac.com:
-
Celiac.com Sponsor (A17):
Celiac.com Sponsor (A17):
Celiac.com Sponsors (A17-M):
-
Recent Activity
-
- Kagemusha commented on Scott Adams's article in Additional Concerns1Hard Rock Cafe Customer Feels Mocked Over Celiac Disease
I would say the server was in the wrong I'm this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.- celiac disease
- cross-contamination
- (and 8 more)
-
- trents replied to Sarah Grace's topic in Related Issues & Disorders12Headaches / Migraines and Hypoglycaemia
If I may put my two cents in here . . . Coffee (caffeine) is a double-edged sword when it comes to headaches. It can relieve them (that's why caffeine is put in many over the counter pain relievers) but it can also cause them - particularly if you consume coffee/tea/soda often and regularly and then are in a situation where you have to go without it... -
- Sarah Grace replied to Sarah Grace's topic in Related Issues & Disorders12Headaches / Migraines and Hypoglycaemia
Hello Knitty Kitty, Many thanks for asking about my progress. Its mixed.... I've been taking Benfotiamine since November. I started on 300mg, but I didn't notice any change. Increased to 900mb in 300mg tablets throughout the day and initially it seemed to be a cure. But then the Hypoglycaemia and migraines started to return...it's really very difficult... -
- trents commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease26
What is a Gluten Challenge and How Long Must it Last?
Welcome to the forum, @Deb888! There is also the possibility that you do not have celiac disease but are gluten sensitive (NCGS or Non Celiac Gluten Sensitivity). They share many of the same GI symptoms but NCGS is 10x more common. There are no tests for it. Celiac disease must first be ruled out. Before the blood draw, had you already begun to...- blood tests
- celiac disease
- (and 8 more)
-
- Deb888 commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease26What is a Gluten Challenge and How Long Must it Last?
I am new to this, but already after three days of no gluten I feel better so much better I can’t believe it. I had the test on Friday and I will get the results, but I guarantee you that I will not do the gluten challenge. I will not subject myself to that illness again. Two nights ago we went to a restaurant and I ate what I thought was a gluten-free meal. ...- blood tests
- celiac disease
- (and 8 more)
-
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.1k
-
Total Posts70.9k
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
Posts
-
If I may put my two cents in here . . . Coffee (caffeine) is a double-edged sword when it comes to headaches. It can relieve them (that's why caffeine is put in many over the counter pain relievers) but it can also cause them - particularly if you consume coffee/tea/soda often and regularly and then are in a situation where you have to go without it for a longer stretch than you are used to. Those who suffer from migraines may likely be more sensitive to the effects of caffeine or the withdrawal of it I'm thinking. And then there is the potential negative impact caffeine can have on sleep patterns for many people. Disruption of sleep patterns is also a migraine trigger for some. I speak as a migraine sufferer myself.
-
By Sarah Grace · Posted
Hello Knitty Kitty, Many thanks for asking about my progress. Its mixed.... I've been taking Benfotiamine since November. I started on 300mg, but I didn't notice any change. Increased to 900mb in 300mg tablets throughout the day and initially it seemed to be a cure. But then the Hypoglycaemia and migraines started to return...it's really very difficult for me to control my diet. I'm still taking the Benfotiamine but I now take the Benfotiamine in the evening and usually about 600mg after my early evening meal. I'm still very sensitive to carbs and especially alcohol and sugar, which makes any social activity really difficult especially in the evenings and having to avoid all gluten as well....anyway I guess most members of this forum are very familiar with this. However, I do think the Benfotiamine is very helpful. I still get significant vertigo (very wobbly at random moments) but I think my brain fog and insomnia have improved. I'm quite active physically (gardening and dog walking etc), so need carbs for this. I am a bit of a coffee addict and wonder what impact that might have? Any suggestions that you have that might further improve my diet and management of the hypoglycaemia would be much appreciated, as I definitely have failed to conquer the problem. -
By Liquid lunch · Posted
Thanks kitty, I needed reminding about thiamine. I ran out of magnesium so stopped taking it and that was ages ago, it definitely helps with my energy levels and general function. I just took some now and I’ll get some more magnesium. Although I don’t really understand the gundry list it does seem to correlate with foods I can/cannot eat, lectins are not all made equal and it seems to be personal which we react to but some are generally more problematic than others, I think he’s based the list on avoiding lectins that people are often reacting to on an igg test. I think it’s fructose I’m reacting to in fruit rather than histamine because I’m fine with coffee, not sure of the quantity of tannins but for me green tea is worse than black and coffee is fine. Interesting about wet beriberi as I nearly died from pneumonia when young so I wonder if it was related. I react differently to the different foods, lectins cause bloating bleeding and severe pain, sugar I feel wiped out but don’t get the bleeding, tea it’s just nausea. I’ve wondered about lectins being sugar binding proteins and my intolerance of sugars but the bleeding does seem to be a specific response to lectin consumption which I think is an autoimmune response because it improves when I take immune modulating mushrooms (reishi and cordyceps). I really do appreciate you being here to help whenever I log in, than you 🙏 -
hey knitty, thanks for the follow up. I did buy the benfotiamine before I saw a couple of the side effects that concerned me esp bracardia. I already have irregular heart beat and have had elevated liver enzymes before. I lowered the count by taking milk thistle in case anyone interested. I realize that many side effects are simply for legal protection but at my age and as a recovering heart patient can not take risk. Anyway, been strictly gluten-free since we last talked. I did add 200 mg of vit b1 in addition to the b complex. Not as much b1 as you suggested because of my conservative nature but at least an attempt. I still have substantial bloating which unfortunately is probably not caused by gluten, as I was hoping that gluten-free would clear it up a bit. I wish that I could report a major benefit from going gluten-free but I can't. But I never got desperately ill as many have reported here and my poor brother who was completely overcome til diagnosed. Take care
-
By knitty kitty · Posted
Since lectins occur in almost everything, it's pretty unrealistic to avoid them all. I didn't understand the rationale behind Dr. Gundry's lists either. Many fruits either contain high histamine amounts or are histamine releasers. Histamine is made by our body, but we can also consume it in foods, because plants and animals make histamine, too. Histamine is a neurotransmitter, that results in alertness. That cup of coffee in the morning? Releases histamine, so we wake up more. But histamine is released as part of the immune response in Celiac and other illnesses, causing inflammation. Our body can clear histamine, but if the body can't keep up with the histamine we are making ourselves as well as the histamine we're eating, we can have serious problems, digestive problems, insomnia, depression. Some fruits can have high levels of fructose, one kind of sugar in fruits. Some intestinal bacteria can ferment fructose, resulting in gas, bloating, diarrhea. So, yes, Fructose Malabsorption can occur in Celiac. Your dont list...Honey, maple syrup, lectins (and their attached carbohydrates), sugar... ....bedridden...These are all carbohydrates, sugars. We need Thiamine to turn carbohydrates into energy. Without sufficient thiamine, we can develop Gastrointestinal BeriBeri which has the classic digestive symptoms, nausea, diarrhea, abdominal pain. Tannins in tea and coffee cleave thiamine in two, making it nonfunctional. Your do list...hazelnuts, pistachios, pressure cooked potatoes, and yogurt, butter, cheese.... These are foods that contain thiamine. Pressure cooked mashed potatoes have more thiamine than boiled potatoes. Those nuts are high in thiamine. Dairy products are a good source of thiamine. I can't diagnose, I'm not a doctor. You read these articles and let me know if anything rings a bell with you. Yes, I see thiamine deficiency everywhere because it is unrecognized by doctors. I recognize it because I had it. Hiding in Plain Sight: Modern Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC8533683/ Thiamine deficiency disorders: a clinical perspective https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/ Refeeding Syndrome (a different article...) https://pubmed.ncbi.nlm.nih.gov/33232094/
-
