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Recent Activity
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- Kipman replied to Kipman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7Indeterminate transglutaminase iga
@knitty kitty Hi there, All my other bloods were within normal limits, though my iron has always been just a couple from being below range. Physio thought I had Ehlers-danlos syndrome, she sent a letter to my doctor but doctor said i don't have it. I've only had stomach issues for 1.5 years. About 4 years ago I lost a tonne of weight (I did... -
- knitty kitty replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Test says no, but body says Yes?
@Travel Celiac, Doing a happy dance with you!!! You're doing very well!!! Kudos for being a rescuer! Hip Hip Hooray! Yes, strenuous exercise can raise your IgA, as can viral infections like the common cold or Covid. https://pmc.ncbi.nlm.nih.gov/articles/PMC9574171/ Do discuss with your doctor the nutritional deficiencies that frequently... -
- Travel Celiac replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Test says no, but body says Yes?
Thank you, trents and knitty kitty! You have confirmed what I thought: Clean living from a gluten-free perspective has meant basic tests would show low-to-no antibodies. It was my doctor who was wondering if I even had it, based on these tests. He's not a gastro-doc, but otherwise a kind and competent doctor. He seems genuinely interested in what...- 1
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- knitty kitty replied to Kipman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms7
Indeterminate transglutaminase iga
@Kipman, Ask for a genetic test to determine if you have any of the known genes for Celiac Disease. Anemia, Thiamine deficiency and diabetes can each cause false negatives and low IgA. You may want to investigate these further with your doctor. Celiac Disease can occur with Ehlers-Danlos Syndrome, another genetic autoimmune disease. Ehlers... -
- knitty kitty replied to Travel Celiac's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Test says no, but body says Yes?
Welcome to the forum, @Travel Celiac! You have to be consuming gluten for your body to trigger the autoimmune response and produce anti-gluten antibodies. If you're not consuming gluten, the autoimmune response is not triggered and you won't produce anti-gluten antibodies. Celiac Disease is genetic. Your genes don't change. You will always have...
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@knitty kitty Hi there, All my other bloods were within normal limits, though my iron has always been just a couple from being below range. Physio thought I had Ehlers-danlos syndrome, she sent a letter to my doctor but doctor said i don't have it. I've only had stomach issues for 1.5 years. About 4 years ago I lost a tonne of weight (I did go through a really traumatic experience at that time which I got c-ptsd from) then 2.5 years ago I put all the weight back on plus 14kg and all within 6 weeks. I went up 3 clothing sizes. Bloat up like I'm months pregnant. Pins and needles, aching joints and muscles, major forgetfulness and brain fog. Only get about 5 hrs sleep, urinate every hour day or night. Nausea and bad belly pain and rashes. No diarrhea though. It all just seemed to come out of no where. It's crazy and I'm getting no answers. Biopsy getting done it 2 days.
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By knitty kitty · Posted
@Travel Celiac, Doing a happy dance with you!!! You're doing very well!!! Kudos for being a rescuer! Hip Hip Hooray! Yes, strenuous exercise can raise your IgA, as can viral infections like the common cold or Covid. https://pmc.ncbi.nlm.nih.gov/articles/PMC9574171/ Do discuss with your doctor the nutritional deficiencies that frequently occur in Celiac Disease and on the gluten free diet. Deficiencies in zinc, iron, the B vitamins, Vitamin C and Vitamin D can all affect your ability to fight off viruses and repair stressed muscles. -
By Travel Celiac · Posted
Thank you, trents and knitty kitty! You have confirmed what I thought: Clean living from a gluten-free perspective has meant basic tests would show low-to-no antibodies. It was my doctor who was wondering if I even had it, based on these tests. He's not a gastro-doc, but otherwise a kind and competent doctor. He seems genuinely interested in what it means to be celiac, and also seems only somewhat familiar with tests & protocols. Hey, at least he's open to learn. Me, I never had a doubt. I just wondered if these tests indicate that I'm doing a good job and the answer is Yes. Hooray! As for the concern over my high overall IgA, I recently injured myself helping a friend not die, and I have loads of inflammation in my lower back and hips at the moment. Perhaps that is the source of the high IgA? Dunno. I dragged a short 200 lb woman around her kitchen like a sack of potatoes as I repeatedly did the Heimlich maneuver (I am quite tall, so kinda had to pick her up). Successful after the 8th heave-ho, to our mutual relief. Good ol' Navy medical training came in good for something! But later, after the adrenaline wore off, I was in paaaaain. I wonder if another source was that I recently had a bad cold, like to the point of taking a COVID test (neg), which knocked me on my butt for a couple weeks. The tests came just a couple days after I was symptom-free. Could that do it? My big takeaway: I have done well in avoiding gluten. So huzzah for that. Thank you both. -
By knitty kitty · Posted
@Kipman, Ask for a genetic test to determine if you have any of the known genes for Celiac Disease. Anemia, Thiamine deficiency and diabetes can each cause false negatives and low IgA. You may want to investigate these further with your doctor. Celiac Disease can occur with Ehlers-Danlos Syndrome, another genetic autoimmune disease. Ehlers-Danlos is a connective tissue disease frequently seen in people who are double jointed or have stretchy skin. This stretchy-ness can affect the digestive system. https://pubmed.ncbi.nlm.nih.gov/27321543/ -
By knitty kitty · Posted
Welcome to the forum, @Travel Celiac! You have to be consuming gluten for your body to trigger the autoimmune response and produce anti-gluten antibodies. If you're not consuming gluten, the autoimmune response is not triggered and you won't produce anti-gluten antibodies. Celiac Disease is genetic. Your genes don't change. You will always have the Celiac genes whether you eat gluten or not. Your negative tTg-IgA shows that you are successfully keeping gluten out of your diet. You are doing very well on that point, but you still are Celiac. Be proud of your accomplishment!
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