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    • Scott Adams
      With NCGS there isn't villi damage, so it would not be detected via an endoscopy/biopsy. There also may not be high levels of tTG-IgA or tTG-IgG (sometimes they can be elevated, but in the normal range), but these blood tests may be slightly elevated or even high in people with NCGS: DGP-IgA and DGP-IgG (Deamidated Gliadin Peptide), but, you can still have it even if all of these tests are normal.
    • KDeL
      That all makes sense thank you.    I was within normal ranges - a little on the lower end.  So, the NCGS would still show positive biopsy? 
    • Scott Adams
      Do you happen to have the reference ranges for those blood tests, as they vary from lab to lab? Just the results don't mean much without those ranges. A gluten challenge would be the only way to get a formal diagnosis of celiac disease, and if the idea of eating lots of gluten for weeks sounds horrible to you, then you likely have either celiac disease and/or non-celiac gluten sensitivity, so you will need to decide how badly you want a formal diagnosis. Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:        
    • Recently diagnosed
      Winter typically ranges from about freezing to minus 13 fahrenheit. We have occasional thaws. We live 2 blocks from the longest skating rink in the world. There are downhill ski hills within 30 minutes drive and we can walk to set cross country ski trails. When dressed appropriately we can walk to Parliament buildings, national museums and art galleries, many restaurants and services.
    • trents
      Welcome to the forum, @Pinkwells19! Can you be more specific about what the name of the test was that scored a 13? There are a number of blood antibody tests that can be run to test for celiac disease. Also, can you give the range that was used for positive vs. negative on the blood test. There are no industry standards for these tests so we need both the test score and the ranges. Was there only one blood test ordered? Please list all tests that were ordered. So, after the blood test they did an endoscopy with biopsy of the small bowel lining which was negative. Correct?  Has your daughter begun the gluten free diet yet?
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