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Recent Activity
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- Manaan2 replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications5Hidden Gluten in distilled vinegar
I realize I'm super late in the game regarding this topic but in case anyone is still reading/commenting on this one-does anyone who is especially sensitive have their personal observations to share regarding Primal Kitchen brand? My daughter was diagnosed almost 2 years ago with celiac and within 6 months, her follow up labs were normal and a year later... -
- chrish42 commented on Scott Adams's article in Spring 2025 Issue1Global Prevalence and Symptoms of Celiac Disease in First-Degree Relatives: Key Findings from a Meta-Analysis (+Video)
Excellent article and study. In the 50s my mother had issues and when I think back she may well have had Celiac but testing at that time was probably non existent. Doctors hopefully will take note and inform Celiacs about the relative relationship.- celiac disease
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- Bebee replied to Bebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Testing for celiac
Thank you knitty kitty!! I appreciate your help and knowledge! -
- knitty kitty replied to Bebee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Testing for celiac
Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea. Usually a gluten challenge is done before endoscopy with biopsies taken, however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have... -
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I realize I'm super late in the game regarding this topic but in case anyone is still reading/commenting on this one-does anyone who is especially sensitive have their personal observations to share regarding Primal Kitchen brand? My daughter was diagnosed almost 2 years ago with celiac and within 6 months, her follow up labs were normal and a year later vitamin levels significantly improving, but we are still battling GI symptoms; particularly, constipation, so much that she has been on MiraLax every day since she was 3. We've managed to get her down to a half cap every other day but without that, she continues to have issues (when she has a known, accidental ingestion unfortunately it takes a lot more MiraLax and additional laxatives to help her). I was searching for something else and found this and am wondering if anyone has any specific comments regarding Primal Kitchen. I feel like we are so incredibly careful with diet, logging diet and symptoms to look for patterns (we've had multiple dieticians help with this piece as well), not eating out, contacting companies and of course, there is always room for improvement but I'm running out of ideas regarding where her issues could be coming from. Even if the Primal Kitchen is contributing, I'm sure it's not the only thing contributing but I can't help but think there must be handful of things that are working together and against her. The ingredients list distilled white vinegar, but also white wine vinegar and balsamic, then "spices" which I'm always cautious about. However, after contacting the company, I felt more comfortable allowing her to consume their products but over time I've realized that the front-line customer service support people don't always provide the most accurate of information. Thanks for reading to anyone that does.
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By knitty kitty · Posted
Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea. Usually a gluten challenge is done before endoscopy with biopsies taken, however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases. You can still have the endoscopy with biopsy samples taken now. After several months with dietary changes, you can have another to compare results and check that intestinal health has improved. You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have. Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues. Our skin is a reflection of our gastrointestinal health. Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check. Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/ -
I am new here, I have been diagnosed with Microscopic Colitis (Lymphatic) years ago and have been gluten-free, DF since, but I still can have occasional bouts of diarrhea (still trying to figure that out). I also have MS, Hypothyroid, Arthritis, Reynaud's and my rosacea has been acting up lately. What treatment is suggested to help with rosacea? I would like to know too if there is a test for celiac if you have been gluten-free? Thank you, Barb
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By bluebird2032 · Posted
Gluten free/ non dairy , low calorie pudding ideas please?
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