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Recent Activity
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- Russ H replied to LeeRoy83's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms13UK Member Looking For Help - Recent Test
There is not enough information to assess the likelihood of coeliac disease. You'll have to chase this up with the quack. The lab should provide antibody titres and a reference range. They might just have done an EMA test, which is negative/positive and antiquated - a proper IgA-ttG2 test would be more helpful. -
- knitty kitty replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5What would a diagnosis tell me?
Blood tests for vitamin deficiencies are not an accurate measurement of vitamin stores within cells where the vitamins are actually utilized. The brain will order cells in tissues and organs to put their stored vitamins into the blood stream to supply the brain and heart. Deficiency symptoms can appear before there's a change in blood levels. The... -
- xxnonamexx replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5What would a diagnosis tell me?
Yes that's why I'm holding off on getting tested until after the summer so no Russian roulette bathroom escapades then I will reintroduce and get tested. The vitamins aren't a supplement they are frozen fruits and vegetables that you blend with water so it's natural fruit and veggies that I have used for 5 years daily. I don't take supplements I did full... -
- knitty kitty replied to Jane07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
any advice would be helpful
There's a Vegetarian version of the Autoimmune Protocol Diet. There are vegetables that can provide Calcium...broccoli, kale, lentils, tofu. Talking to a nutritionist can help identify vegetables that can provide you with the minerals and vitamins you need. Getting dietary advice is part of proper follow up care for people with Celiac disease. tTg... -
- knitty kitty replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
What would a diagnosis tell me?
Ten grams of gluten per day for two weeks or longer is needed to get antibody levels up high enough so that they can be measured in the blood stream and intestinal damage can be seen in the small intestines. HOWEVER, only THREE grams if gluten is needed to produce symptoms...like running to the bathroom. Some people have much worse symptoms after...
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There is not enough information to assess the likelihood of coeliac disease. You'll have to chase this up with the quack. The lab should provide antibody titres and a reference range. They might just have done an EMA test, which is negative/positive and antiquated - a proper IgA-ttG2 test would be more helpful.
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By knitty kitty · Posted
Blood tests for vitamin deficiencies are not an accurate measurement of vitamin stores within cells where the vitamins are actually utilized. The brain will order cells in tissues and organs to put their stored vitamins into the blood stream to supply the brain and heart. Deficiency symptoms can appear before there's a change in blood levels. The eight B vitamins are water soluble. That means they can get flushed out of your system easily with that Russian Roulette Running. Some vitamin deficiencies have gastrointestinal symptoms that mimic Celiac Disease. Thiamine deficiency has gastrointestinal symptoms including diarrhea. Vitamin C is also water soluble with gastrointestinal symptoms like diarrhea when deficient. Symptoms of a deficiency in Niacin B3 include diarrhea, and a blistering reaction to sunlight. Have a nice vacation and keep us posted on your progress when you get back! P.S. There's not a difference between being glutened and being cross contaminated. You'll get your usual symptoms. The digestive tract has a limited vocabulary. -
By xxnonamexx · Posted
Yes that's why I'm holding off on getting tested until after the summer so no Russian roulette bathroom escapades then I will reintroduce and get tested. The vitamins aren't a supplement they are frozen fruits and vegetables that you blend with water so it's natural fruit and veggies that I have used for 5 years daily. I don't take supplements I did full vitamin bloodwork and all great levels for what I need. -
By knitty kitty · Posted
There's a Vegetarian version of the Autoimmune Protocol Diet. There are vegetables that can provide Calcium...broccoli, kale, lentils, tofu. Talking to a nutritionist can help identify vegetables that can provide you with the minerals and vitamins you need. Getting dietary advice is part of proper follow up care for people with Celiac disease. tTg testing is used for diagnostic purposes. It should not be used to signify compliance or healing. -
By knitty kitty · Posted
Ten grams of gluten per day for two weeks or longer is needed to get antibody levels up high enough so that they can be measured in the blood stream and intestinal damage can be seen in the small intestines. HOWEVER, only THREE grams if gluten is needed to produce symptoms...like running to the bathroom. Some people have much worse symptoms after reintroducing gluten, even with amounts of gluten much less than three grams. So...getting glutened or cross contamination is a real concern. You'll be playing Russian Roulette on your vacation. If you got vitamin levels tested while taking a nutritional shake with vitamins, you've simply measured the vitamins from the shake. You need to be off vitamin supplementation for eight weeks prior to vitamin testing. Were more than Vitamin D and B12 tested??? "Normal" levels of these two vitamins don't mean that you're not deficient in the other eleven essential vitamins. Vitamin D and B12 can be stored in the body a lot longer than the other vitamins, especially the other B vitamins like thiamine. Enjoy your vacation!
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