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Recent Activity
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- Richardo replied to CDW's topic in Dermatitis Herpetiformis7dermatitis herpetiformis outbreaks while on strict gluten-free diet
Hi CDW. Some here may disagree with me on this site but, nothing ventured nothing gained. As long as my suggestion does no harm and is a possible help for your struggles I'll throw it out there. I have broached this in another forum.but I know this worked amazingly well for me as I too had return of dermatitis herpetiformis every 3 to 4 months for... -
- trents replied to MomofGF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12Not sure if this is Celiac or just a gluten-free intolerance
Not necessarily. She may have NCGS and in that case doing a perfect gluten challenge would still yield negative antibody test scores. Don't beat yourself up over this. -
- trents replied to MomofGF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms12
Not sure if this is Celiac or just a gluten-free intolerance
@MomofGF, I would refer you to the link from Scott's post above about Celiac Disease Blood Antibody tests as far as what labs we are looking for. That should narrow in down in that we are not looking for a complete CBC/CMP report. I would especially like to know from her labs if she is IGA deficient because that would make increase the likelihood of negative... -
- Scott Adams replied to hmkr's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Positive iGg antibodies but negative biopsy
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests... -
- Scott Adams replied to pplewis3d's topic in Gluten-Free Foods, Products, Shopping & Medications1
Citracal Petite supplements
According to their FAQ page: https://www.citracal.com/faqs they appear to be naturally gluten-free, but throw in the usual CYA statement:
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Hi CDW. Some here may disagree with me on this site but, nothing ventured nothing gained. As long as my suggestion does no harm and is a possible help for your struggles I'll throw it out there. I have broached this in another forum.but I know this worked amazingly well for me as I too had return of dermatitis herpetiformis every 3 to 4 months for 4 years. with a month break then it would return. 1.I am 100% gluten free (I thought) 2.There is no problems with cross contamination with my diet. 3.My skin rash was confirmed as dermatitis herpetiformis by skin biopsy. What I did last spring was go 100% grain free. No oats, corn or even rice. My rash was gone in 2 weeks and never came back intil I tested it 6 months later and ate rice 1 time and corn flour 1 time over a 3 day period. My rash started to come back. I quit again and it has been gone since. A huge relief for me. No more pain itching or unsightly rash ANYWHERE. A study was done in the UK showing that practically all grains contain some type of gluten but the rice corn and oats possibilities IS ALMOST NEVER mentioned in celiac related sites. Perhaps going grain free will help you, perhaps not, but I swear it did wonders for me and hopefully will help ypu too. Worth a try!
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Not necessarily. She may have NCGS and in that case doing a perfect gluten challenge would still yield negative antibody test scores. Don't beat yourself up over this.
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@MomofGF, I would refer you to the link from Scott's post above about Celiac Disease Blood Antibody tests as far as what labs we are looking for. That should narrow in down in that we are not looking for a complete CBC/CMP report. I would especially like to know from her labs if she is IGA deficient because that would make increase the likelihood of negative IGA antibody test scores. But I do agree with Scott in questioning the need for pursuing another gluten challenge for the purpose of more accurate testing. I think you already know your daughter must avoid gluten, whether because she has celiac disease on NCGS. At the end of the day, the antidote is still the same.
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By Scott Adams · Posted
This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate. tTG-IgG (tissue transglutaminase IgG) Blood Test for Celiac Disease: Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. -
By Scott Adams · Posted
According to their FAQ page: https://www.citracal.com/faqs they appear to be naturally gluten-free, but throw in the usual CYA statement:
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