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Recent Activity
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- trents commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease62Celiac Disease Blood Antibody Tests
Welcome to the forum, @MayraR! Immunoglobulin A is also known as "total IGA". It is not a test for celiac disease per se. There are some other potential health issues associated with this value being elevated: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ which suggests further testing.- accurate
- antibodies
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- Liamclarke posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Did I outgrow celiac
I was diagnosed with celiac at age 8 when I dropped down to the bottom 18% of my height and weight class this lead to tests which lead to celiac. I was devastated however with a gluten-free diet I am now taller than 60% of my grade. As I grew older I grew but my symptoms changed to violently throwing up everything inside of my body from a tiny macaron that... -
- MayraR commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease62Celiac Disease Blood Antibody Tests
I was diagnosed with Celiac 7 years ago, my Gastro did blood tests and also took a biopsy, all positive. I have been on a strict gluten free diet since then ….no symptoms, but last month I started with stomach pain and feel bloated, went to my Gastro did blood tests again and my immunoglobulin A came back really high, all other tests are normal. Doing a...- accurate
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- knitty kitty replied to CDW's topic in Dermatitis Herpetiformis8dermatitis herpetiformis outbreaks while on strict gluten-free diet
Hi, @Richardo, Welcome to the forum! Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein. What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin... -
- trents replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms24
New and Frustrated
@Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody...
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By Liamclarke · Posted
I was diagnosed with celiac at age 8 when I dropped down to the bottom 18% of my height and weight class this lead to tests which lead to celiac. I was devastated however with a gluten-free diet I am now taller than 60% of my grade. As I grew older I grew but my symptoms changed to violently throwing up everything inside of my body from a tiny macaron that I know had gluten in it and caused my reaction. However recently I had a full wheat containing cookie and didn’t feel a thing. Absolutely no symptoms at all. No upset stomach no diharea no anything not even a headache. So I told my doctor and he told me to experiment. What better than a fried fluffy donut that aren’t the same gluten-free I had half and had no reaction, not to mention the top ingredient was wheat and it was delicious. Yet still my mom is skeptical and I need to know. Can a kid outgrow celiac????? -
By knitty kitty · Posted
Hi, @Richardo, Welcome to the forum! Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein. What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin B 1. Niacin and Thiamine are needed to turn those carbohydrates into energy to fuel metabolic reactions that keep us healthy. An influx of carbohydrates demands more of these vitamins. Since malabsorption of Celiac can cause us to be low in the eight essential water soluble B vitamins, consuming a high carbohydrate diet can deplete thiamine and niacin stores rapidly. There's evidence that Niacin insufficiency plays a big part in dermatitis herpetiformis. The flushing form of Niacin is known to dilate small blood vessels in the skin which allows the antibodies to be easily cleared from the blisters and induce healing. Niacin intake should be kept under 500 mg a day otherwise it will lower bad cholesterol and raise good cholesterol, but this should only be done under doctor supervision. Thiamine is nontoxic and safe Eve in high doses. Every cell in the body needs thiamine to fuel the mitochondrial functions. A high carbohydrate diet requires 500 - 1000 mg more for every 1000 calories from carbs. -
@Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody tests run?
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By Tracey Thomas · Posted
So yes I am aware that celiac is not an allergy. This is just the steps the doctors put me through. The Dermatologist results came back as a form of hives. A type I’ve never had so I didn’t think they were but test came back as a form of hives. So my celiac test iga was 229 the range was 70-400 so mine fell in normal range. -
Where I live - Celiac is covered on our taxes and is considered a disability as well. So that’s one reason (not just for me because she is almost 18 but when she is out in the world and starts out, I would hate for her to be broke all the time and barely able to feed herself) but she also has many health issues that could be related to Celiac or maybe something else!! But that has to be taken off the table first. She has been so sick since she was 13/14 - dropping 20lbs because of this issue. Had her doctor thought about it then maybe we would have known but this was never tested. Her family doctor never told us what we needed to do aside from eat gluten. It wasn’t explained to us and maybe I should have came here first but I didn’t realize what it meant. Once I see the results online I will come back here with them. I took a pic of the req but it disappeared completely from my phone. I have a bad memory so I don’t remember what they tested for. thanks again for all advice. it is greatly appreciated Nadia 😀👋
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