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Recent Activity
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- pplewis3d replied to pplewis3d's topic in Gluten-Free Foods, Products, Shopping & Medications2Citracal Petite supplements
Thanks, Scott! I appreciate you looking that up for me. Perhaps that will be good enough for someone but not for me...super sensitive dermatitis herpetiformis here. I don't take any chances that I can avoid. ~Pam -
- trents replied to Liamclarke's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Did I outgrow celiac
Welcome to the forum, Liamclarke! We have reports from time to time of people whose celiac disease seems to go into remission. Often, however, it doesn't last. There is also the question of whether or not symptoms or lack of them tell the whole story. Many of us are "silent" celiacs who have very minor or no symptoms when consuming gluten yet slow, insidious... -
- trents commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease62
Celiac Disease Blood Antibody Tests
Welcome to the forum, @MayraR! Immunoglobulin A is also known as "total IGA". It is not a test for celiac disease per se. There are some other potential health issues associated with this value being elevated: https://www.inspire.com/resources/chronic-disease/understanding-high-iga-levels-causes-impacts/ which suggests further testing.- accurate
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- Liamclarke posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease1Did I outgrow celiac
I was diagnosed with celiac at age 8 when I dropped down to the bottom 18% of my height and weight class this lead to tests which lead to celiac. I was devastated however with a gluten-free diet I am now taller than 60% of my grade. As I grew older I grew but my symptoms changed to violently throwing up everything inside of my body from a tiny macaron that... -
- MayraR commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease62Celiac Disease Blood Antibody Tests
I was diagnosed with Celiac 7 years ago, my Gastro did blood tests and also took a biopsy, all positive. I have been on a strict gluten free diet since then ….no symptoms, but last month I started with stomach pain and feel bloated, went to my Gastro did blood tests again and my immunoglobulin A came back really high, all other tests are normal. Doing a...- accurate
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Thanks, Scott! I appreciate you looking that up for me. Perhaps that will be good enough for someone but not for me...super sensitive dermatitis herpetiformis here. I don't take any chances that I can avoid. ~Pam
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Welcome to the forum, Liamclarke! We have reports from time to time of people whose celiac disease seems to go into remission. Often, however, it doesn't last. There is also the question of whether or not symptoms or lack of them tell the whole story. Many of us are "silent" celiacs who have very minor or no symptoms when consuming gluten yet slow, insidious damage is still going on in the gut. The only way to tell for sure in your case would be to be retested after going back on gluten for a period of weeks or months such that sufficient time has elapsed for antibody levels in the blood to build up to detectable levels. And I would certainly advise you to do that and not take anything for granted.
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By Liamclarke · Posted
I was diagnosed with celiac at age 8 when I dropped down to the bottom 18% of my height and weight class this lead to tests which lead to celiac. I was devastated however with a gluten-free diet I am now taller than 60% of my grade. As I grew older I grew but my symptoms changed to violently throwing up everything inside of my body from a tiny macaron that I know had gluten in it and caused my reaction. However recently I had a full wheat containing cookie and didn’t feel a thing. Absolutely no symptoms at all. No upset stomach no diharea no anything not even a headache. So I told my doctor and he told me to experiment. What better than a fried fluffy donut that aren’t the same gluten-free I had half and had no reaction, not to mention the top ingredient was wheat and it was delicious. Yet still my mom is skeptical and I need to know. Can a kid outgrow celiac????? -
By knitty kitty · Posted
Hi, @Richardo, Welcome to the forum! Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein. What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin B 1. Niacin and Thiamine are needed to turn those carbohydrates into energy to fuel metabolic reactions that keep us healthy. An influx of carbohydrates demands more of these vitamins. Since malabsorption of Celiac can cause us to be low in the eight essential water soluble B vitamins, consuming a high carbohydrate diet can deplete thiamine and niacin stores rapidly. There's evidence that Niacin insufficiency plays a big part in dermatitis herpetiformis. The flushing form of Niacin is known to dilate small blood vessels in the skin which allows the antibodies to be easily cleared from the blisters and induce healing. Niacin intake should be kept under 500 mg a day otherwise it will lower bad cholesterol and raise good cholesterol, but this should only be done under doctor supervision. Thiamine is nontoxic and safe Eve in high doses. Every cell in the body needs thiamine to fuel the mitochondrial functions. A high carbohydrate diet requires 500 - 1000 mg more for every 1000 calories from carbs. -
@Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody tests run?
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