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Recent Activity
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- trents replied to MomofGF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Not sure if this is Celiac or just a gluten-free intolerance
@Brook G, would you explain what you mean when you say, "I'm assuming that I'm probably extremely gluten intolerant because QUINOA gives me a gluten reaction." Quinoa is naturally gluten free. However, it is possible to have been cross contaminated with gluten-containing grains and the seed coat lectins can make some people (like me) quite ill if it is unwashed... -
- Brook G replied to MomofGF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms16Not sure if this is Celiac or just a gluten-free intolerance
Years ago when I told my GI specialist that I'd like to be tested for Celiac he told me that being I had been gluten-free for over a year, I would test negative. In order to get an accurate reading I would have to eat a full gluten diet for 5 weeks. I agreed to do it and on the way home I stopped at the grocery store and stocked up on my favorite breads... -
- Richardo replied to CDW's topic in Dermatitis Herpetiformis10dermatitis herpetiformis outbreaks while on strict gluten-free diet
I never eat oats, haven't for years because of the possible cross contamination. I know the difference in my.body's reaction to the big 3 vs corn or rice. Vomiting was always an issue if I wasn't careful.with wheat, rye or barley but rhe only issue I had with corn was the dermatitis herpetiformis. I'm not a dermatologist but I know how certain foods affect...- 1
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- James47 replied to James47's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3Long term recovery
Aw thank you that's really helpful.. thanks to everyone who posted back James- 1
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- AuntieAutoimmune posted a topic in Traveling with Celiac Disease0Royal Caribbean Only, Please
Hi, Everyone, My husband and I are contemplating an RCL cruise and would like to hear from anyone who has sailed on RCL. Please do not post information on other cruise lines. We are either going on Celebrity (which we've sailed many times and know is good—we don't need any information) or Royal Caribbean. So, RCL only, please, and only those who have a...
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@Brook G, would you explain what you mean when you say, "I'm assuming that I'm probably extremely gluten intolerant because QUINOA gives me a gluten reaction." Quinoa is naturally gluten free. However, it is possible to have been cross contaminated with gluten-containing grains and the seed coat lectins can make some people (like me) quite ill if it is unwashed quinoa.
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Years ago when I told my GI specialist that I'd like to be tested for Celiac he told me that being I had been gluten-free for over a year, I would test negative. In order to get an accurate reading I would have to eat a full gluten diet for 5 weeks. I agreed to do it and on the way home I stopped at the grocery store and stocked up on my favorite breads, deserts, and every other gluten product that I love and hadn't eaten for over a year. Five days later I was in agony! I was bloated, I stopped going poo, I could barely move my joints and I felt like my hands had been crushed in a car door. I was bent over and couldn't stand straight, and I moaned constantly. I had a very difficult time sleeping because of the pain. I lost nearly 20lbs that I didn't need to loose, and I had to go on a liquid diet to reset my digestive track. I was sick for weeks. Because of this experience, I can't recommend that anyone put themself through the change of eating a gluten free to eating a full gluten diet. For me, it wasn't worth getting an official diagnoses. I'm assuming that I'm probably extremely gluten intolerant because QUINOA gives me a gluten reaction. Most of us have similar symptoms, but they do vary. I'm not qualified to diagnose your daughter, but some of her symptoms fit the diagnoses. She may be getting gluten from somewhere and not realize it. I do recommend a good GI specialist and testing other than the blood test which she would have to eat gluten for.
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I never eat oats, haven't for years because of the possible cross contamination. I know the difference in my.body's reaction to the big 3 vs corn or rice. Vomiting was always an issue if I wasn't careful.with wheat, rye or barley but rhe only issue I had with corn was the dermatitis herpetiformis. I'm not a dermatologist but I know how certain foods affect me and I just hope my story can offer others an alternative hope to try that isn't dangerous to their health. As for me... I'm grain free LOL and loving the freedom from dermatitis herpetiformis.
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Aw thank you that's really helpful.. thanks to everyone who posted back James
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By AuntieAutoimmune · Posted
Hi, Everyone, My husband and I are contemplating an RCL cruise and would like to hear from anyone who has sailed on RCL. Please do not post information on other cruise lines. We are either going on Celebrity (which we've sailed many times and know is good—we don't need any information) or Royal Caribbean. So, RCL only, please, and only those who have already sailed. Thanks!
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