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Recent Activity
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- KikiSa replied to KikiSa's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms2Confused about test results
Thank you very much for your response Scott. Apparently the second TTG Iga test was ten times the normal. I’m just surprised that there can be such a huge difference between the test results. It concerns me also that the lab has just recently changed their reporting. There are not really many/ any symptoms anymore. I was suspicious about celiac several y... -
- PA Painter replied to Eldene's topic in Food Intolerance & Leaky Gut29Oats gluten free?
Yes, excessive neuropathy and a debilitating headache, spasms, cramps, tremors. Very much what you would expect from Parkinson or MS, only it coincides with the food and resolves 100% with a whole food AND gluten free diet. The gluten free diet was not enough on it's own I had to eliminate all processed food as well. They did the biopsy a year ago. -
- pweidema commented on Scott Adams's article in Additional Concerns1The Hidden Challenges of Gluten-Free Dining: What Dylan Dreyer's Airport Experience Reveals for People with Celiac Disease and Gluten Sensitivity
When I ate at food stands in Italy (where apparently all food staff has training in celiac needs) I was always able to get gluten-free eggplant parm (yum!). I assume they got it pre-prepared and simply heated it up. Wish we could do the same here.- airport
- celiac disease
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- pweidema commented on Scott Adams's article in Latest Research1
Study Examines Modern vs. Ancient Wheat Proteins and Their Impact on Celiac Disease and Gluten Sensitivity (+Video)
Interesting - thanks!- amylase
- ancient grains
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- trents replied to Eldene's topic in Food Intolerance & Leaky Gut29Oats gluten free?
This. How long has it been since you were tested for celiac disease?
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Thank you very much for your response Scott. Apparently the second TTG Iga test was ten times the normal. I’m just surprised that there can be such a huge difference between the test results. It concerns me also that the lab has just recently changed their reporting. There are not really many/ any symptoms anymore. I was suspicious about celiac several years ago, and had my child tested then (it was negative then), so we never thought further about it as the pediatrician continued to tell us his shorter stature must be genetic even though we are average height parents. Also I did not have as much knowledge at the time. I guess we will know more after the endoscopy. It pains me to think this may have been an issue for years. I worry now if we are getting false negatives for my other children also.
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By PA Painter · Posted
Yes, excessive neuropathy and a debilitating headache, spasms, cramps, tremors. Very much what you would expect from Parkinson or MS, only it coincides with the food and resolves 100% with a whole food AND gluten free diet. The gluten free diet was not enough on it's own I had to eliminate all processed food as well. They did the biopsy a year ago. -
This. How long has it been since you were tested for celiac disease?
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You have been doing all the right things to manage your celiac disease since diagnosis so what would you have changed? Perhaps the only negligence was not seeking follow-up testing sooner and more regularly. But even then, what would you have done differently as far as the day to day management of your celiac disease? I assume you realize that when something is labeled "gluten free" that does not mean it contains "0" gluten. According to FDA regulations, it just means it contains no more than 20 ppm of gluten. And "certified gluten free" (GFCO) means the product contains no more than 10 ppm. Even the air we breathe contains some gluten as there has to be at least some wheat/barley/rye dust circulating in the atmosphere. My point is, take reasonable precautions to control what you can control and then live your life. You will eventually die of something probably not related to celiac disease.
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By PA Painter · Posted
I've had the testing up to the biopsy. Once they confirm the intestine is not affected they cease pursuing further diagnosis, regardless of extra intestinal symptoms. They refuse to pursue anything non celiac. I react to: banana, avacado, fresh cabbage, yogurt, pecans, walnuts, xantham gum, and obviously wheat, barley, etc. Even so called "gluten free" food cause a violent reaction. Believe it or not. I can eat 3 Tostitos any more than that ruins my next three days. I did have one of the genes for potential autoimmune problems but they said it could mean anything. The most I get in the stomach is acid reflux and hot snakes. My intestinal symptoms are minimal. I think the pathology is different in way yet similar in others.
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