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Recent Activity
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- trents replied to nanny marley's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1New here help needed
Welcome to the forum, @nanny marley! Unfortunately, after bein on a gluten free diet or even a reduced gluten diet for weeks or months, you can expect test results to be negative. -
- trents replied to alimb's topic in Coping with Celiac Disease3
How to keep water down?
Sounds like your parents are in denial about your celiac disease. Do you have an official diagnosis? Have you been able to keep the anti nausea meds you mentioned down long enough to get into your system? -
- Mantooth posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms0Anyone Else Experiencing These Symptoms?
Hi everyone, I’m currently in the process of figuring out if celiac disease might be the cause of some persistent symptoms I’ve been dealing with, and I’d love to hear from others who’ve had similar experiences. I’m not diagnosed yet, but these are the symptoms I’ve been struggling with: Diarrhea Constipation (sometimes alternating between the... -
- alimb replied to alimb's topic in Coping with Celiac Disease3How to keep water down?
I'm a minor under my parents roof, and they absolutely refuse to take me to the ER for anything celiac related, and I do not trust myself to drive at the moment. I'll try to convince them once more, though, thank you for replying -
- nanny marley posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1New here help needed
Hi I've joined here today hoping someone can help me I've had long running bowel issues upper pain bloating gas changing stools sickness extreme bowel pain after food was told it was ibs but had I've got older I've learned a little more I've recently cut gluten and lactose out for 6 months and I've been loads better only odd flare up but it's been something...
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Posts
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Welcome to the forum, @nanny marley! Unfortunately, after bein on a gluten free diet or even a reduced gluten diet for weeks or months, you can expect test results to be negative.
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Sounds like your parents are in denial about your celiac disease. Do you have an official diagnosis? Have you been able to keep the anti nausea meds you mentioned down long enough to get into your system?
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Hi everyone, I’m currently in the process of figuring out if celiac disease might be the cause of some persistent symptoms I’ve been dealing with, and I’d love to hear from others who’ve had similar experiences. I’m not diagnosed yet, but these are the symptoms I’ve been struggling with: Diarrhea Constipation (sometimes alternating between the two) Elevated Liver Enzymes - (dont know why) Visual Snow syndrome (static vision) Sandy stools or really skinny - (sorry for the TMI) Muscle cramps and general soreness Tingling in my hands and feet Bloating that can feel really uncomfortable Tiredness and extreme fatigue SI joint pain and stiffness Herniated disk and degenerative disk disease + stenosis. Ive been trying to figure out whats causing these symptoms for 8+ years and I believe its caused by Celiac. Ive had a blood test come back negative so my doctor immediatly writes it off now. Ive seen every type of specialist under the sun and no one can help me. Im currently on a gluten-free diet but have recently learned about reactive foods that can cause the same symptoms as well so im consistenly changing my diet to accomidate. Did anyone else have these symptoms before getting a diagnosis? Thank-you!
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I'm a minor under my parents roof, and they absolutely refuse to take me to the ER for anything celiac related, and I do not trust myself to drive at the moment. I'll try to convince them once more, though, thank you for replying
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By nanny marley · Posted
Hi I've joined here today hoping someone can help me I've had long running bowel issues upper pain bloating gas changing stools sickness extreme bowel pain after food was told it was ibs but had I've got older I've learned a little more I've recently cut gluten and lactose out for 6 months and I've been loads better only odd flare up but it's been something I've obviously eaten I shouldnt of I've had to cut graveys sauces and salads out too some fruits and veg sets me off also so I've had a strict diet so I decided to go the docters again and ask to be tested for coeliac she's sent me for a blood test for CPR and a fecal test for cal protein but I was wondering would this not show anything now I have cut those foods out for so long I know there's definitely something because if I deviate off the foods I'm terrible with pain gas and diarrhea and feeling nausea and very tired I just don't want to go for these if it should be done different and have false results I've been struggling for over 30 years I've had cancer tests all fine but just lately it got the point were I couldn't go out because I was embarrassed because I had gas all the time and if I got a flare up I needed up be near a toilet had it was very urgent that's why I did the gluten lactose elimination diet and it seems to help 90% but she said it's fine don't stop doing that any replies would be greatly appreciated thankyou
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